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patient registry

Known as: Patient Registry Study, patient registries 
Observational studies which include an organized system that uses observational methods to collect uniform data (clinical and other) prospectively… 
National Institutes of Health

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Clinical Data Interchange Standards Consortium Terminology

Papers overview

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Review
2017
Review
2017
Applying the Chronic Care Model to Improve Care and Outcomes at a Pediatric Medical Center.
2017
2017
The galactosemia network (GalNet)
2015
2015
Improvement in influenza vaccination rates in a pediatric sickle cell disease clinic
Children with sickle cell disease (SCD) are at increased risk of complications from influenza. However, despite widespread… 
Review
2014
Review
2014
The pooling of manpower and resources through the establishment of European reference networks and rare disease patient registries is a necessary area of collaboration for rare renal disorders.
This review aims to provide guidance on emerging concepts and policy related to European reference networks (ERNs) for rare… 
2013
2013
Registry-based diabetes risk detection schema for the systematic identification of patients at risk for diabetes in West Virginia primary care centers.
Approximately 466,000 West Virginians, or about 25 percent of the state population, have prediabetes and are at high risk for… 
2011
2011
Data Standards in Diabetes Patient Registries
Widespread adoption of electronic health records (EHRs) and expansion of patient registries present opportunities to improve… 
2006
2006
Using a simple patient registry to improve your chronic disease care.
Who needs an EHR? Software you already have can help you make sure your patients get the care they need. 
2004
2004
Creating a Culture of Quality: The Remarkable Transformation of the Department of Veterans Affairs Health Care System
For decades, fairly or unfairly, the Department of Veterans Affairs (VA) health care system had a suboptimal image in the quality… 
Review
2000
Review
2000
Risk factors in the early diagnosis of ALS: North American epidemiological studies
Patient-specific (endogenous) and population-specific (exogenous) risk factor analysis is identifying novel physical and chemical… 
1983
1983
The michael reese hospital stroke registry a microcomputer-implemented data base
Abstract A properly implemented patient registry can greatly facilitate clinical research, serving to establish or negate… 
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