patient registry

Known as: Patient Registry Study, patient registries 
Observational studies which include an organized system that uses observational methods to collect uniform data (clinical and other) prospectively… (More)
National Institutes of Health

Topic mentions per year

Topic mentions per year

1973-2017
05019732017

Papers overview

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Review
2015
Review
2015
The pathogenesis of systemic sclerosis (SSc) is complex and largely unclear. The clinical heterogeneity of the disease and its… (More)
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Highly Cited
2014
Highly Cited
2014
BACKGROUND Advances in treatments for cystic fibrosis (CF) continue to extend survival. An updated estimate of survival is needed… (More)
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2013
2013
Duchenne muscular dystrophy (DMD) is an X-linked genetic disease, caused by the absence of the dystrophin protein. Although many… (More)
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2012
2012
Study design:Development of a prospective patient registry.Objective:To develop a patient registry for persons with traumatic… (More)
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2010
2010
A movement to create a global patient registry for as many as 7,000 rare diseases was launched at a workshop, "Advancing Rare… (More)
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Highly Cited
2009
Highly Cited
2009
 
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2005
2005
BACKGROUND Implementation of the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule has the potential to… (More)
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2003
2003
BACKGROUND This study tested the effects of two organizational support processes, the provision of financial incentives for… (More)
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Highly Cited
1995
Highly Cited
1995
The Danish National Patient Register, which includes information on all patients admitted to hospitals, has been evaluated as… (More)
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Highly Cited
1995
Highly Cited
1995
This article reports outcomes of 6417 patients treated during 1991-1993 in 28 burn centers. Data were gathered by use of the ABA… (More)
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