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disease registry

Known as: disease registries 
National Institutes of Health

Papers overview

Semantic Scholar uses AI to extract papers important to this topic.
2014
2014
A data standard for sourcing fit-for-purpose biological samples in an integrated virtual network of biobanks.
Human tissue biobanks are at the epicenter of clinical research, responsible for providing both clinical samples and annotated… 
Review
2013
Review
2013
A Validity Review of the National Burn Repository
Health-related registries arose because of clinicians’ desires to improve patient quality of care for a specific disorder. As… 
Review
2013
Review
2013
Developments in procedural and disease registries: a focus on coronary artery disease
Purpose of review Registries are becoming an increasingly important component of clinical practice through the collection of… 
2009
2009
Conducting Unlinked Anonymous HIV Surveillance in Developing Countries: Ethical, Epidemiological, and Public Health Concerns
Stuart Rennie and colleagues argue that while unlinked anonymous HIV testing is valuable and ethical, such surveillance can be… 
2009
2009
Beyond Health Information Technology: Critical Factors Necessary for Effective Diabetes Disease Management
Background: Electronic health records (EHRs) have been implemented throughout the United States with varying degrees of success… 
Review
2006
Review
2006
Health Insurance Portability and Accountability Act Privacy Rule Causes Ongoing Concerns among Clinicians and Researchers
When the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule took effect in 2003, physicians worried about… 
2002
2002
Design and development of an Internet registry for congenital heart defects.
BACKGROUND Congenital Heart Defects (CHD) are conditions that encompass more than 50 diagnoses and are due to developmental… 
2000
2000
A national disease registry moves beyond clinical impact, fostering measurable cost savings at the community hospital level.
National disease registries have existed for many years, and give hospitals and medical professionals centralized, disease… 
1998
1998
Effects of Record Linkage Errors on Disease Registration
Abstract: Reliable record linkage is a prerequisite for high-quality population-based disease registration. Rapid developments in… 
Review
1992
Review
1992
The Completeness of AIDS Surveillance
AIDS surveillance data are widely used in setting HIV intervention policies, and the effectiveness of these data depend on their… 
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