• Corpus ID: 204910272

Youth with ME/CFS: Untangling Complexities in Technology Design to Support Everyday Living

@article{Brsting2018YouthWM,
  title={Youth with ME/CFS: Untangling Complexities in Technology Design to Support Everyday Living},
  author={Jorun B{\o}rsting and Alma Leora Cul{\'e}n},
  journal={International journal on advances in intelligent systems},
  year={2018},
  volume={11},
  pages={1-12}
}
  • Jorun Børsting, A. Culén
  • Published 30 June 2018
  • Computer Science
  • International journal on advances in intelligent systems
In this paper, we argue that the technology design needs to take a more holistic perspective, beyond opportunities offered by the technology development alone. This is especially important when developing technologies for complex contexts, such as healthcare, and for users who are at risk. Furthermore, we present a sense-making process, informed by tools and methods from social science, complex systems design and design thinking, and intended for human-computer interaction designers and… 

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References

SHOWING 1-10 OF 55 REFERENCES

Sense-Making in Complex Healthcare Domains: The Role of Technology in Every Day Lives of Youth Suffering from ME/CFS

TLDR
It is argued that the technology design needs to take a more holistic perspective, well beyond opportunities offered by the technology development alone, when developing technologies for complex domains, such as healthcare, and with users who are at risk.

The Digital Life of Vulnerable Users: Designing with Children, Patients, and Elderly

TLDR
This paper explores designing with three vulnerable groups: children with special needs, chronically ill teenage patients, and isolated, or afraid of being so in the near future, elderly adults.

Designing with Vulnerable Children: A Researcher's Perspective

In this chapter, the authors consider a researcher’s perspective in projects involving design of assistive technologies for and with children who have moderate to severe limitations, such as

Experiences with a Research Product: A Robot Avatar for Chronically Ill Adolescents

This chapter discusses challenges related to studying the use and usefulness of research products (robust, high fidelity prototypes placed in real use contexts for research purposes). Methods and

Austin Center for Design

TLDR
By bringing the lab to the world, the program hopes to remove the clinical and reductionist approach to research in order to both understand and empathize with the messiness of systems, policies, and cultures.

'Sometimes it feels as if the world goes on without me': adolescents' experiences of living with chronic fatigue syndrome.

TLDR
The core theme, 'Sometimes it feels as if the world goes on without me', encompasses the feelings an adolescent living with chronic fatigue syndrome might have about life and is supported by four subthemes that reflect the experience of social isolation, their own and others' understanding of the illness and hope for the future.

Second life avatars as extensions of social and physical bodies in people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

In 2009, a virtual reality support centre in the virtual world Second Life was constructed for people with myalgic encephalomyelitis/chronic fatigue syndrome to determine whether a virtual reality

Perspective and Use of Empathy in Design Thinking

TLDR
The paper takes a closer look into one of the main attributes of Design Thinking: Empathy by exploring two main aspects, the emotional and the cognitive.

Wicked Problems in Design Thinking

Introduction Despite efforts to discover the foundations of design thinking in the fine arts, the natural sciences, or most recently, the social sciences, design eludes reduction and remains a

Design Thinking

TLDR
A look at papers published in MIS Quarterly and other major IS journals reveals important commonalities in the practice of design science research but also reveals important differences.
...