Why Cochrane should prioritise sharing data

@article{Shokraneh2018WhyCS,
  title={Why Cochrane should prioritise sharing data},
  author={Farhad Shokraneh and Clive E Adams and Michael Clarke and Laura Amato and Hilda Bastian and Elaine Beller and Jon Brassey and Rachelle Buchbinder and Marina Davoli and Chris Del Mar and Paul P. Glasziou and Christian Gluud and Carl J. Heneghan and Tammy C. Hoffmann and John P. A. Ioannidis and Mahesh Jayaram and Joey S.W. Kwong and David Moher and Erika Ota and Rebecca Syed Sheriff and Luke Vale and Ben Goldacre},
  journal={British Medical Journal},
  year={2018},
  volume={362}
}
Packer1 says that the one who submits a research for public good should be ready to receive a request for data sharing for examination and re-analysis and that tax payers assume that a national agency is checking such data and analysis. Here we discuss Cochrane’s practice on data sharing. Open science, as endorsed by the G7,2 includes sharing data, computer code, and materials. It is essential for reproducibility, collaboration, and innovation. We support the work of Cochrane, but are… 
Study-based registers reduce waste in systematic reviewing: discussion and case report
TLDR
SBRs saved time in question-setting and scoping and made rapid production of nine Cochrane systematic reviews possible, and improve quality while helping prioritise and conduct systematic reviews.
Open Synthesis: on the need for evidence synthesis to embrace Open Science
TLDR
Evidence synthesis communities needs to better embrace Open Science not only to balance knowledge access and increase efficiency, but also to increase reliability, trust and reuse of information collected and synthesised within a review: concepts fundamental to systematic reviews and maps.
Cochrane’s reply to Shokraneh and colleagues
  • D. Tovey
  • Medicine
    British Medical Journal
  • 2018
TLDR
It is worth restating the progress that Cochrane has made regarding open data and open access, which reflects its commitment and is consistent with its mission to promote evidence informed health decision making.
Reproducibility and replicability of systematic reviews
TLDR
The current editorial discusses the generalisability and practicality of these strategies to systematic reviews and claims that systematic reviews have even a greater potential than other research designs to lead the movement toward the reproducibility of research.
Introducing RAPTOR: RevMan Parsing Tool for Reviewers
TLDR
This proof-of-concept programme to extract, curate and structure data from Cochrane reviews illustrates how the efforts of reviewers meticulously extracting study data can be improved, disseminated and reused with little additional effort.
Cochrane Schizophrenia Group’s Study-Based Register of Randomized Controlled Trials: Development and Content Analysis
TLDR
Development and content analysis of Cochrane Schizophrenia Group’s Study-Based Register is reported and curated datasets within the register uncover new patterns in data that have implications for research, policy, and practice for testing new interventions in trials or systematic reviews.
Quantitative Evidence Synthesis Methods for the Assessment of the Effectiveness of Treatment Sequences for Clinical and Economic Decision Making: A Review and Taxonomy of Simplifying Assumptions
TLDR
This paper critically explores the methods for quantitative evidence synthesis of the effectiveness of sequential treatment options within a health technology assessment (HTA) or similar process and covers methods for developing summary estimates of clinical effectiveness or the clinical inputs for the cost-effectiveness assessment.
Current practices in meta‐regression in psychology, education, and medicine
TLDR
It is found that the best practices defined in the previous review are rarely carried out in practice and areas where further methods development is needed to address persistent problems in the field are identified.
Фармакоэкономика и Фармакоэпидемиология
TLDR
By using modern mathematical methods for big data analysis, it is demonstrated clearly that the authors of the text CD003177 used clinically heterogeneous cohorts of patients, and a subjective approach used by the above authors regarding the role of PUFAs in the prevention of cardiovascular morbidity is demonstrated.
...
...

References

SHOWING 1-10 OF 50 REFERENCES
Time to consider sharing data extracted from trials included in systematic reviews
TLDR
Embracing systems to enable more open access to systematic review data has considerable potential to maximise the benefits of research investment in undertaking systematic reviews.
Sharing Individual Participant Data from Clinical Trials: An Opinion Survey Regarding the Establishment of a Central Repository
TLDR
There is support in this community of IPD reviewers, many of whom are also involved in clinical trials, for storing IPD in a central repository, and the main concerns were gaining permission from trial data owners, uncertainty about the purpose of the repository, potential resource implications, and increased workload for I PD reviewers.
OpenTrials: towards a collaborative open database of all available information on all clinical trials
TLDR
The intention is to create an open, freely re-usable index of all structured data and documents on all clinical trials to increase discoverability, facilitate research, identify inconsistent data, enable audits on the availability and completeness of this information, support advocacy for better data and drive up standards around open data in evidence-based medicine.
The FAIR Guiding Principles for scientific data management and stewardship
TLDR
This Comment is the first formal publication of the FAIR Principles, and includes the rationale behind them, and some exemplar implementations in the community.
Innovations in Data Collection, Management, and Archiving for Systematic Reviews
TLDR
A step-by-step tutorial for collecting, managing, and archiving data for systematic reviews and suggest steps for developing rigorous data collection forms in the Systematic Review Data Repository (SRDR).
Joint declaration of data citation principles
TLDR
Data citations should be accorded the same importance in the scholarly record as citations of other research objects, such as publications and should be sufficiently flexible to accommodate the variant practices among communities.
Enabling Living Systematic Reviews and Clinical Guidelines through Semantic Technologies
TLDR
A brief review of the related literature on various efforts to produce semantic technologies for sharing and reusing content from clinical investigations (RCTs and other clinical primary studies) outlines some of the necessary metadata that needs to be captured in order to achieve some initial automation in authorship of systematic reviews and clinical guidelines.
Open Data for Global Science
TLDR
The opportunities and challenges to the global science system associated with establishing an open data policy are reviewed.
Sharing Detailed Research Data Is Associated with Increased Citation Rate
TLDR
This correlation between publicly available data and increased literature impact may further motivate investigators to share their detailed research data.
Study-based registers of randomized controlled trials: Starting a systematic review with data extraction or meta-analysis
TLDR
The ultimate goal of having a study-based register is to facilitate efficient production of systematic reviews providing rapid, yet accurate, evidence for the decision-makers.
...
...