Views of Discrimination among Individuals Confronting Genetic Disease

  title={Views of Discrimination among Individuals Confronting Genetic Disease},
  author={Robert Klitzman},
  journal={Journal of Genetic Counseling},
Though the US passed the Genetic Information Non-Discrimination Act, many questions remain of how individuals confronting genetic disease view and experience possible discrimination. We interviewed, for 2 hours each, 64 individuals who had, or were at risk for, Huntington’s Disease, breast cancer, or Alpha-1 antitrypsin deficiency. Discrimination can be implicit, indirect and subtle, rather than explicit, direct and overt; and be hard to prove. Patients may be treated “differently” and unfairly… CONTINUE READING
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