Ventilator dependence and expressions of need: a study of patients with amyotrophic lateral sclerosis in Japan.

@article{Hirano2006VentilatorDA,
  title={Ventilator dependence and expressions of need: a study of patients with amyotrophic lateral sclerosis in Japan.},
  author={Yuko Mandai Hirano and Yoshihiko Yamazaki and Junichi Shimizu and Taisuke Togari and Thomas James Bryce},
  journal={Social science & medicine},
  year={2006},
  volume={62 6},
  pages={1403-13}
}
This research examined the experience of Amyotrophic Lateral Sclerosis (ALS) patients who depend on an invasive mechanical ventilator in Japan. We investigated their difficulties in expressing their needs, their desires and wishes, and their sources of support and happiness. We examined the relationship between these factors and patient demographics, and hope as an indicator of successful adaptation to the illness experience (assessed by the Herth Hope Index). Interview results guided the… CONTINUE READING