Usefulness of a national registry of alpha-1-antitrypsin deficiency. The Spanish experience.

@article{Miravitlles1998UsefulnessOA,
  title={Usefulness of a national registry of alpha-1-antitrypsin deficiency. The Spanish experience.},
  author={Marc Miravitlles and Rafael Ara{\'u}jo Vidal and Juan Carlos Barros-Tiz{\'o}n and Alejandro Bustamante and Pedro Pablo Espa{\~n}a and Francisco Casas and Maria Teresa Boyano Martinez and Carmelo Escudero and Rosendo Jard{\'i}},
  journal={Respiratory medicine},
  year={1998},
  volume={92 10},
  pages={1181-7}
}
Severe alpha-1-antitrypsin (AAT) deficiency, phenotype Pi ZZ, is a rare condition with an estimated prevalence of 1/4500 individuals in Spain. Given this low prevalence, it seems useful to accumulate all the information derived from the care of these patients. In this context, the Spanish Registry of patients with AAT deficiency was founded in 1993; its main objectives were to establish guidelines adapted to our country for the treatment and management of AAT-deficient patients, offer expert… CONTINUE READING

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