Up against the System: A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care

@inproceedings{Cook2013UpAT,
  title={Up against the System: A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care},
  author={Karen A Cook and Harold Hal Siden and Susan M. Jack and Lehana Thabane and G Butler Browne},
  booktitle={Nursing research and practice},
  year={2013}
}
Advances in pediatric care have not provided the interdisciplinary support services required by those young adults with pediatric life-threatening conditions (pedLTCs) who live beyond childhood but have limited expectations to live past early adulthood. These young adults, the first generation to live into adulthood, face multiple challenges transitioning from a plethora of pediatric palliative services to scant adult health services. In a case study, using an innovative bulletin board focus… CONTINUE READING
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References

Publications referenced by this paper.
Showing 1-10 of 57 references

Better care: an analysis of nursing and healthcare system outcomes. The health of our nation—the future of our health system: paper 2

  • G. Browne, S. Birch, L. Thabane
  • 2012, http://www2.cna-aiic.ca/CNA/documents/pdf…
  • 2012

High Visibility: young adult palliative and hospice care in the United Kingdom

  • Public Systems Works
  • 2012, http://www.act.org.uk/highvisibility/.
  • 2012

Seamless care? Moving through the care and support system as a young person with palliative care needs

  • APPG All Parliamentary Group on Hospice, Palliative Care
  • 2012, http://www.ncpc.org.uk/.
  • 2012

The STEPP Project

  • Together for Short Lives
  • 2012, http:// www.togetherforshortlives.org.uk…
  • 2012

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