Underutilization of Genetics Services for Autism: The Importance of Parental Awareness and Provider Recommendation

@article{Wydeven2012UnderutilizationOG,
  title={Underutilization of Genetics Services for Autism: The Importance of Parental Awareness and Provider Recommendation},
  author={Kimberly Vande Wydeven and Andrea C Kwan and Antonio Y. Hardan and J A Bernstein},
  journal={Journal of Genetic Counseling},
  year={2012},
  volume={21},
  pages={803-813}
}
Reasons for the underutilization of genetics services by families of children with autism spectrum disorders (ASD) are not well understood. We report the identification of factors associated with this underuse. Survey-based study of parents and/or guardians of children with ASD. One hundred fifty-five families completed the questionnaire. Thirty-one of 155 (20%) children had seen a genetics professional. Forty-nine of 154 (32%) children had undergone genetic testing. Parents whose child saw a… CONTINUE READING