Understanding of and attitudes to genetic testing for inherited retinal disease: a patient perspective

@inproceedings{Willis2013UnderstandingOA,
  title={Understanding of and attitudes to genetic testing for inherited retinal disease: a patient perspective},
  author={Thomas A Willis and Barbara Potrata and Mehnaz Ahmed and Jenny Hewison and Richard J. B. Gale and Lindsey Downey and Martin McKibbin},
  booktitle={The British journal of ophthalmology},
  year={2013}
}
BACKGROUND/AIMS The views of people with inherited retinal disease are important to help develop health policy and plan services. This study aimed to record levels of understanding of and attitudes to genetic testing for inherited retinal disease, and views on the availability of testing. METHODS Telephone questionnaires comprising quantitative and qualitative items were completed with adults with inherited retinal disease. Participants were recruited via postal invitation (response rate 48… CONTINUE READING