UceWeb: a web-based collaborative tool for collecting and sharing quality of life data.

@article{Parimbelli2015UceWebAW,
  title={UceWeb: a web-based collaborative tool for collecting and sharing quality of life data.},
  author={Enea Parimbelli and Lucia Sacchi and Stefania Rubrichi and Andrea Mazzanti and Silvana Quaglini},
  journal={Methods of information in medicine},
  year={2015},
  volume={54 2},
  pages={
          156-63
        }
}
OBJECTIVES This work aims at building a platform where quality-of-life data, namely utility coefficients, can be elicited not only for immediate use, but also systematically stored together with patient profiles to build a public repository to be further exploited in studies on specific target populations (e.g. cost/utility analyses). METHODS We capitalized on utility theory and previous experience to define a set of desirable features such a tool should show to facilitate sound elicitation… 
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Citation Type

Collaborative Filtering for Estimating Health Related Utilities in Decision Support Systems
TLDR
The effort is devoted to enhance traditional elicitation techniques proposing a methodology to predict patients’ health-related utility coefficients by means of integrating different data sources such as medical surveys, questionnaires and utility elicitation tools along with patient self-reported experiences in the form of natural language.
Eliciting and Exploiting Utility Coefficients in an Integrated Environment for Shared Decision-Making.
TLDR
An integrated environment to facilitate shared decision-making in the clinical practice is developed with a set of production rules that recommend the optimal elicitation method according to the patient's profile and health state and a functionality for quantifying and running decision trees defined through the commercial software TreeAge.
How to identify and treat data inconsistencies when eliciting health-state utility values for patient-centered decision making
Assessment of a personalized and distributed patient guidance system
MobiGuide: a personalized and patient-centric decision-support system and its evaluation in the atrial fibrillation and gestational diabetes domains
TLDR
The knowledge elicitation and specification methodologies that are developed for making CIGs patient-centered and enabling their personalization are explained and demonstrated and feasibility is demonstrated in two very different clinical domains and two different geographic sites.
Quality of life and health-related utility after head&neck cancer surgery
TLDR
The study provides utility values that can be used not only for a specific cost-utility analysis, but for future studies involving health states following trans-oral head & neck surgery, and confirms that some UCs vary among countries, demanding for tailored elicitation tasks.
Treatment selection for life-critical shared decision making under ranges of health-state utility scenarios
Computer-Assessed Preference-Based Quality of Life in Patients with Spinal Cord Injury
TLDR
Demographic and clinical variables are useful to predict QoL but do not completely capture utility coefficients variability, therefore, direct preference-based utility elicitation should be strengthened.
Quality of life and health-related utility after trans-oral surgery for head and neck cancers
TLDR
Health utility coefficients for the Swiss population for health states following minimally invasive trans-oral surgery provide utility values that can be used not only for a specific cost-utility analysis, but also for future studies involving the same health states.
Towards the Economic Evaluation of Two Mini-invasive Surgical Techniques for Head&Neck Cancer: A Customizable Model for Different Populations
TLDR
A two-stage model, composed by a first decision tree ac-counting for the surgical complications and need for additional treatments, which in turn are used as initial conditions for a second decision tree that models long-term outcomes through a Markov process is built.
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