Trends and determinants of end-of-life practices in ALS in the Netherlands.

  title={Trends and determinants of end-of-life practices in ALS in the Netherlands.},
  author={Martijn F. H. Maessen and Jan Herman Veldink and Bregje D. Onwuteaka-Philipsen and Juna M. de Vries and John H. J. Wokke and Gerrit van der Wal and Leonard H van den Berg},
  volume={73 12},
BACKGROUND In the Netherlands, the proportion of patients with amyotrophic lateral sclerosis (ALS) who choose the option of euthanasia or physician-assisted suicide (PAS) is relatively high (20%). The objective of this study was to determine which factors influence end-of-life practices in ALS and whether rates are changing over time. METHODS In a cohort survey, 204 physicians and 198 informal caregivers (response rates 75% and 80%) of patients with ALS who died between 2000 and 2005 filled… CONTINUE READING


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