Treatment patterns, health-related quality of life and adherence to prophylaxis among haemophilia A patients in the United States.

@article{Duncan2012TreatmentPH,
  title={Treatment patterns, health-related quality of life and adherence to prophylaxis among haemophilia A patients in the United States.},
  author={Natalie August Duncan and Arthur G. Shapiro and Xuan Ye and Joel Epstein and Michelle Luo},
  journal={Haemophilia : the official journal of the World Federation of Hemophilia},
  year={2012},
  volume={18 5},
  pages={
          760-5
        }
}
Prophylaxis and adherence to prophylaxis are increasingly recognized as important factors for the health-related quality of life (HRQOL) of haemophilia patients. This study aims to assess treatment practices over time, HRQOL and adherence among severe haemophilia A patients in the US. Severe haemophilia A patients or their caregivers participated in a 2009 cross-sectional survey. HRQOL was measured using either PEDS-QL or SF-12; adherence was measured using the VERITAS-Pro. Student t-tests… CONTINUE READING
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