Transition and transfer of adolescents and young adults with pediatric onset chronic disease: the patient and parent perspective.

@article{Fernandes2014TransitionAT,
  title={Transition and transfer of adolescents and young adults with pediatric onset chronic disease: the patient and parent perspective.},
  author={Susan M. Fernandes and Joanne O'Sullivan-Oliveira and Michael J. Landzberg and Paul Khairy and Patrice R. Melvin and Gregory S. Sawicki and Sonja I Ziniel and Lisa B Kenney and Katharine C. Garvey and Amy E Sobota and Rebecca Flynn O'Brien and Peter A Nigrovic and Niraj J. Sharma and Laurie Newman Fishman},
  journal={Journal of pediatric rehabilitation medicine},
  year={2014},
  volume={7 1},
  pages={43-51}
}
PURPOSE To determine patients' and parents' perceptions regarding the delivery of transition education and perceived barriers to transfer to adult oriented care. METHODS A self-report survey was administered to a convenience sample of patients (16-25 years old) with various childhood onset chronic diseases. A similar survey was administered to their parents/guardians. RESULTS A total of 155 patients and 104 parents participated in the study. The mean age of patients was 18.8 ± 2.3 years; 57… CONTINUE READING

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