The thing about pain: The remaking of illness narratives in chronic pain expressions on social media

  title={The thing about pain: The remaking of illness narratives in chronic pain expressions on social media},
  author={Elena Gonzalez-Polledo and Jen Tarr},
  journal={New Media \& Society},
  pages={1455 - 1472}
In this article, we analyse chronic pain narratives on Flickr and Tumblr. We focus on how, by incorporating visual and multimodal elements, chronic pain expressions in social media significantly extend and challenge the logic, function and effects of traditional ‘illness narratives’. We examine a sample of images and blogs related to chronic pain and formulate a typology of chronic pain expressions on these sites. Flickr brings a form of narrative immediacy, making the pain experience visible… 

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  • 2004
Making sense of everyday pain.
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