The role of the multidisciplinary health care team in the management of patients with Marfan syndrome

@inproceedings{Kodolitsch2016TheRO,
  title={The role of the multidisciplinary health care team in the management of patients with Marfan syndrome},
  author={Yskert von Kodolitsch and Meike Rybczynski and Marina Vogler and Thomas S. Mir and Helke Schueler and Kerstin Kutsche and Georg Rosenberger and Christian Detter and Alexander Martin Justus Bernhardt and Axel Larena-Avellaneda and Tilo K{\"o}lbel and Eike Sebastian Debus and Malte Schr{\"o}der and Stephan Johannes Linke and Bettina Fuisting and Barbara Napp and Anna Lena Kammal and Klaus P{\"u}schel and Peter Bannas and Boris Alexander Hoffmann and Nele Gessler and Eva Vahle-Hinz and B{\"a}rbel Kahl-Nieke and G{\"o}tz Thomalla and Christina Weiler-Normann and Gunda Ohm and Stefan Neumann and Dieter Benninghoven and Stefan S Blankenberg and Reed E Pyeritz},
  booktitle={Journal of multidisciplinary healthcare},
  year={2016}
}
Marfan syndrome (MFS) is a rare, severe, chronic, life-threatening disease with multiorgan involvement that requires optimal multidisciplinary care to normalize both prognosis and quality of life. In this article, each key team member of all the medical disciplines of a multidisciplinary health care team at the Hamburg Marfan center gives a personal account of his or her contribution in the management of patients with MFS. The authors show how, with the support of health care managers, key team… CONTINUE READING
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