The role of support groups in facilitating families in coping with a genetic condition and in discussion of genetic risk information.

@article{Plumridge2012TheRO,
  title={The role of support groups in facilitating families in coping with a genetic condition and in discussion of genetic risk information.},
  author={Gillian Plumridge and Alison Metcalfe and Jane Coad and Paramjit Gill},
  journal={Health expectations : an international journal of public participation in health care and health policy},
  year={2012},
  volume={15 3},
  pages={255-66}
}
BACKGROUND   Giving children and young people information about genetic conditions and associated risk has been shown to be important to their identity, coping and decision making. Parents, however, find talking to their children difficult, and support from health professionals is often not available to them. OBJECTIVE   To explore the role of support groups in family coping, and in assisting parents' communication about risk with children in families affected by an inherited genetic… CONTINUE READING