The quality of life of home-ventilated children and their primary caregivers plus the associated social and economic burdens: a prospective study.

@article{Seear2016TheQO,
  title={The quality of life of home-ventilated children and their primary caregivers plus the associated social and economic burdens: a prospective study.},
  author={Michael D Seear and Akshat Kapur and David Wensley and K. Morrison and Ariana Behroozi},
  journal={Archives of disease in childhood},
  year={2016},
  volume={101 7},
  pages={620-7}
}
BACKGROUND Despite the obvious challenges faced by families caring for children on home ventilation, there is surprisingly little research into the details of their daily lives. In particular, little is known about the quality of life of the child and caregiver plus the associated social and economic burdens of care. METHODS We prospectively studied 90 families enrolled in a paediatric home ventilation service in British Columbia. In the clinic, we recorded demographic information, patient… CONTINUE READING
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