The process of reconciliation: evaluation of guidelines for translating quality-of-life questionnaires

@article{Koller2012ThePO,
  title={The process of reconciliation: evaluation of guidelines for translating quality-of-life questionnaires},
  author={Michael Koller and Valeska Kantzer and Isabelle Mear and Katie Zarzar and Mona L. Martin and Eva Greimel and Andrew Bottomley and Mar{\'i}a Arnott and Dagmara Kuliś},
  journal={Expert Review of Pharmacoeconomics \& Outcomes Research},
  year={2012},
  volume={12},
  pages={189 - 197}
}
Reconciliation refers to the process through which two or more independent forward translations are merged into one single translation. This critical step in the translation process is difficult to formalize. The purpose of this review is to analyze how reconciliation is specified in leading guidelines for the translation of quality-of-life questionnaires and other patient-reported outcome forms with regard to the number and qualifications of individuals involved, the processes followed, as… 
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35 Citations
Background Citations
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Methods Citations
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Results Citations
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35 Citations

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Citation Type

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References

SHOWING 1-10 OF 30 REFERENCES
Trends in translation requests and arising issues regarding cultural adaptation
TLDR
The questionnaires developed by the European Organisation for Research and Treatment of Cancer Quality of Life Group are widely used to measure quality of life in cancer patients and there is a continuous rise in requests for new language versions of the questionnaires.
Translating health status questionnaires and evaluating their quality: the IQOLA Project approach. International Quality of Life Assessment.
A Comprehensive Method for the Translation and Cross-Cultural Validation of Health Status Questionnaires
TLDR
The FACIT translation methodology aims to establish equivalence of meaning and measurement between different country versions through the use of the decentered model of translation and advanced statistical methods.
Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines.
A methodology for successfully producing global translations of patient reported outcome measures for use in multiple countries.
TLDR
The methodology used to create global translations of the Chronic Liver Disease Questionnaire-Hepatitis C Virus (CLDQ-HCV) enabled the successful resolution of the translation issues encountered, and resulted in consistent translations that were linguistically and culturally appropriate for all target countries.
Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: report of the ISPOR Task Force for Translation and Cultural Adaptation.
  • D. Wild, A. Grove, Pennifer Erikson
  • Medicine, Psychology
    Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research
  • 2005
TLDR
A consensus emerged on a broad approach, along with a detailed critique of the strengths and weaknesses of the differing methodologies in this review of translation and cultural adaptation of patient-reported outcome measures.
The Asthma Control Scoring System: translation and cross-cultural adaptation for use in Brazil.
TLDR
The use of this careful methodology in the translation and cross-cultural adaptation of the ACSS has ensured its cultural adequacy for Brazil and showed clarity, understandability, and acceptability.
Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system
TLDR
A multilingual translation of the Functional Assessment of Cancer Therapy (FACT) Quality of Life Measurement System (Version 3) into the following languages: Dutch, French, German, Italian, Norwegian and Swedish is initiated.
Guidelines for the process of cross-cultural adaptation of self-report measures.
TLDR
The guidelines described in this document are based on a review of cross-cultural adaptation in the medical, sociological, and psychological literature and led to the description of a thorough adaptation process designed to maximize the attainment of semantic, idiomatic, experiential, and conceptual equivalence between the source and target questionnaires.
Quality of life assessment: International perspectives
TLDR
The author outlines the ongoing work on the development of a generic, multilingual health related quality of life instrument and describes the steps employed in its development up to the point where a pilot version of the instrument was tested.
...
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