The privacy-reciprocity connection in biobanking: comparing German with UK strategies.

Abstract

In recent years, the adequacy of the 'gift' model of research participation has been increasingly questioned. This study used focus groups to explore how potential and actual participants of biobanks in the UK and Germany negotiate the relationship between concerns over privacy protection, reciprocity and benefit sharing. In Germany, 15 focus groups (n… (More)
DOI: 10.1159/000336671

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@article{Hobbs2012ThePC, title={The privacy-reciprocity connection in biobanking: comparing German with UK strategies.}, author={Amanda Hobbs and Johannes Starkbaum and Ursula Gottweis and Heinz Erich Wichmann and Herbert Gottweis}, journal={Public health genomics}, year={2012}, volume={15 5}, pages={272-84} }