The involvement of parents in healthcare decisions where adult children are at risk of lacking decision-making capacity: a qualitative study of treatment decisions in epilepsy.

@article{Redley2013TheIO,
  title={The involvement of parents in healthcare decisions where adult children are at risk of lacking decision-making capacity: a qualitative study of treatment decisions in epilepsy.},
  author={Marcus Redley and Elizabeth Prince and Naomi Bateman and Melissa Pennington and Nancy Wood and Tim J. Croudace and H Ring},
  journal={Journal of intellectual disability research : JIDR},
  year={2013},
  volume={57 6},
  pages={531-8}
}
BACKGROUND Patients with intellectual disabilities (ID) receive health care by proxy. It is family members and/or paid support staff who must recognise health problems, communicate with clinicians, and report the benefits, if any, of a particular treatment. At the same time international and national statutes protect and promote the right of people with disabilities to access the highest attainable standards of health on the basis of free and informed consent. METHODS To consider the role of… CONTINUE READING

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