The humanistic and economic burden of Dravet syndrome on caregivers and families: Implications for future research

@article{Jensen2017TheHA,
  title={The humanistic and economic burden of Dravet syndrome on caregivers and families: Implications for future research},
  author={Mark P Jensen and Andreas Brunklaus and Liam Dorris and Sameer M Zuberi and Arnold R. Gammaitoni},
  journal={Epilepsy & Behavior},
  year={2017},
  volume={70},
  pages={104-109}
}
We reviewed the current literature with respect to the humanistic and financial burdens of Dravet Syndrome (DS) on the caregivers of children with DS, in order to (1) identify key unanswered questions or gaps in knowledge that need to be addressed and then, based on these knowledge gaps, (2) propose a research agenda for the scientific community to address in the coming decade. The findings support the conclusion that caring for a child with DS is associated with significant humanistic burden… CONTINUE READING
8
Twitter Mentions

Topics from this paper.

References

Publications referenced by this paper.
SHOWING 1-10 OF 41 REFERENCES

Comprehensive care of children with Dravet syndrome.

  • Epilepsia
  • 2011
VIEW 7 EXCERPTS
HIGHLY INFLUENTIAL

Helping Families Cope with the Severe Stress of Dravet Syndrome.

  • The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques
  • 2016
VIEW 4 EXCERPTS
HIGHLY INFLUENTIAL