The health-related quality of life of adults with Gaucher's disease receiving enzyme replacement therapy: results from a retrospective study

@article{Damiano1998TheHQ,
  title={The health-related quality of life of adults with Gaucher's disease receiving enzyme replacement therapy: results from a retrospective study},
  author={Anne M. Damiano and Gregory McCarthy Pastores and John E. Ware},
  journal={Quality of Life Research},
  year={1998},
  volume={7},
  pages={373-386}
}
Few studies have reported on the effect of Gaucher's disease on patient-reported, health-related quality of life (HRQoL) and we do not know how the HRQoL burden of Gaucher's disease compares to that of other chronic conditions, what areas of HRQoL are most affected or how the course of change in HRQoL compares with that observed for other conditions or for the general adult population. The purpose of this study was to estimate (1) the HRQoL burden associated with Gaucher's disease managed by… CONTINUE READING

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