The changing picture of amyotrophic lateral sclerosis: lessons from European registers

@article{Hardiman2017TheCP,
  title={The changing picture of amyotrophic lateral sclerosis: lessons from European registers},
  author={O. Hardiman and A. Al-Chalabi and C. Brayne and E. Beghi and L. H. van den Berg and A. Chi{\`o} and Sarah Martin and G. Logroscino and J. Rooney},
  journal={Journal of Neurology, Neurosurgery, and Psychiatry},
  year={2017},
  volume={88},
  pages={557 - 563}
}
  • O. Hardiman, A. Al-Chalabi, +6 authors J. Rooney
  • Published 2017
  • Medicine
  • Journal of Neurology, Neurosurgery, and Psychiatry
  • Prospective population based-registers of amyotrophic lateral sclerosis (ALS) have operated in Europe for over two decades, and have provided important insights into our understanding of ALS. Here, we review the benefits that population registers have brought to the understanding of the incidence, prevalence, phenotype and genetics of ALS and outline the core operating principles that underlie these registers and facilitate international collaboration. Going forward, we offer lessons learned… CONTINUE READING
    60 Citations

    Topics from this paper

    Epidemiology of amyotrophic lateral sclerosis: an update of recent literature
    • 34
    The epidemiology of amyotrophic lateral sclerosis in Moscow (Russia)
    Amyotrophic lateral sclerosis
    • 18
    • PDF
    Natural history and clinical features of ALS in Malaysia.
    Assessing amyotrophic lateral sclerosis prevalence in Norway from 2009 to 2015 from compulsory nationwide health registers
    • 13
    • PDF
    Amyotrophic lateral sclerosis
    • 18
    • PDF
    Clinical characteristics of a large cohort of US participants enrolled in the National Amyotrophic Lateral Sclerosis (ALS) Registry, 2010–2015
    • 11

    References

    SHOWING 1-10 OF 78 REFERENCES
    Descriptive epidemiology of amyotrophic lateral sclerosis: new evidence and unsolved issues
    • 378
    Epidemiology and clinical features of amyotrophic lateral sclerosis in Ireland between 1995 and 2004
    • 169
    Amyotrophic lateral sclerosis: Analysis of ALS cases in a predominantly admixed population of Ecuador
    • 12
    Incidence of amyotrophic lateral sclerosis in Europe
    • 600
    A multidisciplinary clinic approach improves survival in ALS: a comparative study of ALS in Ireland and Northern Ireland
    • 119
    • PDF
    Variation in worldwide incidence of amyotrophic lateral sclerosis: a meta-analysis
    • 128
    • PDF