The Role of Everyday Sounds in Advanced Dementia Care

@article{Houben2020TheRO,
  title={The Role of Everyday Sounds in Advanced Dementia Care},
  author={Maarten Houben and Rens Brankaert and Saskia Bakker and Gail Kenning and Inge M. B. Bongers and Berry Eggen},
  journal={Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems},
  year={2020}
}
The representation of sounds derived from everyday life can be beneficial for people with dementia by evoking memories and emotional responses. Despite this potential, integrating sound and sound-based interventions in care facilities has not received much research attention. In this paper, we present the findings from a field study that explored the responses of 19 people with advanced dementia to a selection of everyday sounds presented to them in a care home and the role of these responses… 

Figures from this paper

Exploring Everyday Sounds in Dementia: Practical Guidelines for Interactive Workshops
TLDR
A critical reflection on the research protocol is provided and practical guidelines are articulated to enable the involvement of people with dementia and to promote social engagement and meaningful activity in the process of identifying affective audio content.
The Perspectives of Professional Caregivers on Implementing Audio-Based Technology in Residential Dementia Care
TLDR
This paper presents the outcome of three participatory workshops with 18 professional caregivers to explore how audio-based technology can add value to existing care processes and activities in residential dementia care and links findings in research with practice.
Empowering Caregivers of People Living with Dementia to Use Music Therapeutically at Home: Design Opportunities
TLDR
Analysis of case studies of home-based music therapy training interventions with two families shows that embodied interactions supported the therapist in responding to the needs of the PwD and built an empathic environment that empowered the caregivers’ learning.
Turnaround: Exploring Care Relations in Dementia Through Design
TLDR
The preliminary results reveal how the role of resident and caregiver shifted towards equal partnership during the exploration and interaction with Turnaround, and it is argued that technologies should foster partnerships in care activities by facilitating shared forms of expression and reinforcement of agency.
Evaluating Engagement in Technology-Supported Social Interaction by People Living with Dementia in Residential Care
Technologies can support the wellbeing of people living with dementia in residential care by fostering meaningful interactions through multimodal and playful features. This article presents the
Taking an (Embodied) Cue From Community Health: Designing Dementia Caregiver Support Technology to Advance Health Equity
TLDR
A new caregiver support perspective is presented, which proposes employing embodied cueing, such as imitation or action mimicry, as a communication modality that can align technology with community caregiving approaches, promote agency in people with dementia, and relieve caregiver burden.
Smile: Capturing and Sharing Personal Photos to Stimulate Social Relations and Support Self-Identity in Dementia
As dementia progresses, it often prompts changes to living arrangements and care provision as people with dementia are required to move from their home environment into long-term care. Over time,
Warm Technology: A Novel Perspective on Design for and with People Living with Dementia
TLDR
This chapter discusses five technology temptations and proposes technology development that includes people with dementia in the process, is easy to use by them and takes their experience as leading, and shows potential for a new chapter in technology design.
Assistive Media for Well-being
TLDR
This chapter explores the value of personal digital media for supporting well-being in older age, drawing on concepts from literatures on art, reminiscence and music therapy, and proposes a framework for understanding and designing assistive media systems which highlights the interaction between media item, author and audience.
Surfacing the Voices of People with Dementia: Strategies for Effective Inclusion of Proxy Stakeholders in Qualitative Research
TLDR
Practical approaches to prioritizing participants’ voices are illustrated through concrete excerpts that demonstrate strategies for better managing dynamics, intervening effectively, and engaging all stakeholders in the research process.
...
1
2
3
...

References

SHOWING 1-10 OF 84 REFERENCES
Foregrounding Everyday Sounds in Dementia
TLDR
This paper presents the outcomes of three workshops, exploring the personal experiences evoked by soundscapes of people in early to mid-stages of dementia, and identifies several design considerations and practical insights for sound-based technologies in the context of dementia care.
Creative and Opportunistic Use of Everyday Music Technologies in a Dementia Care Unit
TLDR
Everyday technologies in use in a long-term dementia care ward are described, and the importance for interaction design for dementia in appreciating the role of active creative participation in sustaining personhood in dementia is highlighted.
Soundscape design for management of behavorial disorders : a pilot study among nursing home residents with dementia
TLDR
This study presents the progress of a pilot experiment in five nursing homes in Flanders participating in the development and testing of specifically designed soundscapes aiming to improve the quality of care and reduce BPSD in residents.
Designing a multimedia conversation aid for reminiscence therapy in dementia care environments
TLDR
Project CIRCA (Computer Interactive Reminiscence and Conversation Aid), utilizes interactive multimedia to stimulate long-term memory to prompt verbal and non-verbal communication and can contribute significantly to 'quality of life' in dementia care environments.
Global music approach to persons with dementia: evidence and practice
TLDR
The proposed model can be considered a low-cost nonpharmacological intervention and a therapeutic–rehabilitation method for the reduction of behavioral disturbances, for stimulation of cognitive functions, and for increasing the overall quality of life of persons with dementia.
Reminiscence therapy for dementia.
TLDR
The review highlights the urgent need for more and better designed trials so that more robust conclusions may be drawn on the effects of reminiscence therapy for older people with dementia and their care-givers.
Care and Design: An Ethnography of Mutual Recognition in the Context of Advanced Dementia
TLDR
The findings from a long-term ethnographic study are presented, which aimed to gain an understanding of their lived experience and inform design practices for and with people with advanced dementia in residential care.
Printer Pals: Experience-Centered Design to Support Agency for People with Dementia
TLDR
'Printer Pals' a receipt-based print media device, which encourages social contribution and agency within a care home environment, and a series of design consideration to support agentic and caring interactions through inclusive design practices.
Re-socialising sound: investigating sound, selfhood and intersubjectivity among people living with dementia in long-term care
TLDR
This paper argues that the authors should resist narrow conceptualisations of sound as unwanted noise that must be reduced, and that sound should still be considered as a social tool, and discusses tensions between institutional control and acoustical agency.
LiveNature: Ambient Display and Social Robot-Facilitated Multi-Sensory Engagement for People with Dementia
TLDR
An interactive system called LiveNature is designed that adopts a novel combined approach involving an ambient display unit and an interactive robotic sheep to provide holistic multi-sensory engagement to provoke positive emotions, increase social bonding, and restore attentiveness and communication in people with dementia.
...
1
2
3
4
5
...