The Registry and Follow-Up of Complex Pediatric Therapies Program of Western Canada: A Mechanism for Service, Audit, and Research after Life-Saving Therapies for Young Children

@inproceedings{Robertson2011TheRA,
  title={The Registry and Follow-Up of Complex Pediatric Therapies Program of Western Canada: A Mechanism for Service, Audit, and Research after Life-Saving Therapies for Young Children},
  author={Charlene M. T. Robertson and Reginald S. Sauve and Ari Robin Joffe and Gwen Y. Alton and Diane M. Moddemann and Patricia M. Blakley and Anne R Synnes and Irina A. Dinu and Joyce R. Harder and Reeni N Soni and Jaya P. Bodani and Ashok P. Kakadekar and John D. Dyck and Derek G Human and David B. Ross and Ivan M. Rebeyka},
  booktitle={Cardiology research and practice},
  year={2011}
}
Newly emerging health technologies are being developed to care for children with complex cardiac defects. Neurodevelopmental and childhood school-related outcomes are of great interest to parents of children receiving this care, care providers, and healthcare administrators. Since the 1970s, neonatal follow-up clinics have provided service, audit, and research for preterm infants as care for these at-risk children evolved. We have chosen to present for this issue the mechanism for longitudinal… CONTINUE READING
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