The Perceived Advantages and Disadvantages of Presymptomatic Testing for Machado-Joseph Disease: Development of a New Self-Response Inventory
@article{Rolim2006ThePA, title={The Perceived Advantages and Disadvantages of Presymptomatic Testing for Machado-Joseph Disease: Development of a New Self-Response Inventory}, author={L. Rolim and J. Zagalo-Cardoso and C. Pa{\'u}l and J. Sequeiros and Manuela Fleming}, journal={Journal of Genetic Counseling}, year={2006}, volume={15}, pages={375-391} }
This study describes the construction of a self-response inventory to evaluate the perception of advantages and disadvantages of the Machado-Joseph disease presymptomatic testing, in 44 individuals at-risk for this disease. The results showed that the reliability of this inventory was satisfactory. Factor analysis revealed a bidimensional structure: perceived advantages (pros) and perceived disadvantages (cons) of presymptomatic testing. Social desirability was found unrelated to the total… CONTINUE READING
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References
SHOWING 1-10 OF 94 REFERENCES
A new scale of social desirability independent of psychopathology.
- Psychology, Medicine
- Journal of consulting psychology
- 1960
- 7,894
- Highly Influential
- PDF
Non-Participation in Predictive Testing for Huntington’s Disease: Individual Decision-Making, Personality and Avoidant Behaviour in the Family
- Psychology, Medicine
- European journal of human genetics : EJHG
- 1997
- 59
ESCALA DE ACEITAÇÃO DO TESTE PRÉ-SINTOMÁTICO: ESTUDO DE VALIDAÇÃO COM UMA AMOSTRA DE PESSOAS EM RISCO PARA A DOENÇA DE MACHADO-JOSEPH
- Psychology
- 2005
- 1
Three-year follow-up after presymptomatic testing for Huntington's disease in tested individuals and partners.
- Psychology, Medicine
- Health psychology : official journal of the Division of Health Psychology, American Psychological Association
- 1997
- 149
Psychological costs and benefits of predictive testing for Huntington's disease.
- Medicine
- American journal of medical genetics
- 1994
- 169
A meta-analysis of studies of the Health Belief Model with adults.
- Psychology, Medicine
- Health education research
- 1992
- 690
An experimental study of influences on the perceived likelihood of seeking genetic testing: "nondirectiveness" may be misleading.
- Psychology, Medicine
- Journal of psychosomatic research
- 1999
- 12
- Highly Influential
Predictive testing for Huntington disease: II. Demographic characteristics, life-style patterns, attitudes, and psychosocial assessments of the first fifty-one test candidates.
- Medicine
- American journal of medical genetics
- 1989
- 131
Development and validation of the State Hope Scale.
- Psychology, Medicine
- Journal of personality and social psychology
- 1996
- 1,413
- Highly Influential