The Perceived Advantages and Disadvantages of Presymptomatic Testing for Machado-Joseph Disease: Development of a New Self-Response Inventory

@article{Rolim2006ThePA,
  title={The Perceived Advantages and Disadvantages of Presymptomatic Testing for Machado-Joseph Disease: Development of a New Self-Response Inventory},
  author={L. Rolim and J. Zagalo-Cardoso and C. Pa{\'u}l and J. Sequeiros and Manuela Fleming},
  journal={Journal of Genetic Counseling},
  year={2006},
  volume={15},
  pages={375-391}
}
  • L. Rolim, J. Zagalo-Cardoso, +2 authors Manuela Fleming
  • Published 2006
  • Psychology, Medicine
  • Journal of Genetic Counseling
  • This study describes the construction of a self-response inventory to evaluate the perception of advantages and disadvantages of the Machado-Joseph disease presymptomatic testing, in 44 individuals at-risk for this disease. The results showed that the reliability of this inventory was satisfactory. Factor analysis revealed a bidimensional structure: perceived advantages (pros) and perceived disadvantages (cons) of presymptomatic testing. Social desirability was found unrelated to the total… CONTINUE READING
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