• Corpus ID: 70457966

The PIRICOM study : a systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research

@inproceedings{Brett2010ThePS,
  title={The PIRICOM study : a systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research},
  author={J Brett and Sophie Staniszewska and Carole Mockford and Kate Seers and Sandy Herron-Marx and Helen R. Bayliss},
  year={2010}
}
• Aims: The specific aim of capturing or measuring impact of PPI must be included. • Results: State that impact has been assessed and report any key impacts. • 
Values associated with public involvement in health and social care research: a narrative review
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Underlying values are rarely made explicit despite the potential for these to have significant influence on the practice and assessment of PI.
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A pilot study of an intervention to facilitate patients’ agenda setting in clinical consultations to assess the extent to which patient and public involvement (PPI) could contribute to the process of qualitative data analysis (QDA).
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Patient and service user engagement in research: a systematic review and synthesized framework
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Numerous frameworks for supporting, evaluating and reporting patient and public involvement in research exist. The literature is diverse and theoretically heterogeneous.
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  • A. Boivin, A. L’Espérance, J. Abelson
  • Medicine, Political Science
    Health expectations : an international journal of public participation in health care and health policy
  • 2018
TLDR
Reviews looking at evaluation tools for patient engagement in individual decision making do exist, but no similar articles in research and health systems have been published.
A critical analysis of the implementation of service user involvement in primary care research and health service development using normalization process theory
  • E. Tierney, R. McEvoy, A. MacFarlane
  • Medicine
    Health expectations : an international journal of public participation in health care and health policy
  • 2016
TLDR
This review focuses on current practice to critically interrogate factors known to be relevant for normalization – definition, enrolment, enactment and appraisal.
Evaluation of public involvement in research: time for a major re-think?
TLDR
Two alternative approaches are available for constructing and evaluating patient involvement, each of which requires us to revisit the purposes and values that underpin it in each stage of the research process.
Impact on the individual: what do patients and carers gain, lose and expect from being involved in research?
TLDR
This study explored how patients and carers in eight diagnostic research specialties have been involved in research, their motivations and the impact involvement had on them, including providing a life focus and an improved relationship with illness.
Developing the evidence base of patient and public involvement in health and social care research
TLDR
It is argued that service users should be collaboratively involved in the conceptualization, theorization and development of instruments to measure PPI impact, and the key advantages measurement would bring in strengthening the PPI evidence base.
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References

SHOWING 1-10 OF 125 REFERENCES
A multidimensional conceptual framework for analysing public involvement in health services research
  • S. Oliver, R. Rees, G. Gyte
  • Political Science, Education
    Health expectations : an international journal of public participation in health care and health policy
  • 2008
TLDR
The development of a multidimensional conceptual framework capable of drawing out the implications for policy and practice of what is known about public involvement in research agenda setting is described.
Collaborative research between users and professionals: peaks and pitfalls
TLDR
An overview of the emerging field of collaborative research between clinical academics and service users in the field of mental health is given, along with some examples of different kinds of collaborativeResearch and the value they can bring to more mainstream studies.
Involving patients as advisors in pharmacy practice research: what are the benefits?
TLDR
The ways in which members of the public with a chronic condition were involved as advisors in a research project exploring pharmacist supplementary prescribing are described to reflect upon the benefits and difficulties of this approach so that the patient perspective can be accommodated more fully in future research.
Patients and professionals as research partners: challenges, practicalities, and benefits.
TLDR
The combined experiences of researchers and patients who are collaborating in rheumatology research, and the working model that has evolved are reported, providing one example of a practical model for collaboration based on experience.
Engaging the public in priority‐setting for health technology assessment: findings from a citizens’ jury
  • D. Menon, Tania Stafinski
  • Political Science, Medicine
    Health expectations : an international journal of public participation in health care and health policy
  • 2008
Objectives  To assess the feasibility of using a citizens’ jury to elicit public values on health technologies and to develop criteria for setting priorities for health technology assessment (HTA).
Cases for Change: User Involvement in Mental Health Services and Research
TLDR
The experience of involving mental health service users in research on adult mental health services and some of the key benefits and challenges of user involvement in the research process itself are described.
Do different stakeholder groups share mental health research priorities? A four‐arm Delphi study
  • C. Owens, A. Ley, P. Aitken
  • Medicine, Political Science
    Health expectations : an international journal of public participation in health care and health policy
  • 2008
TLDR
This research examines the extent to which different stakeholder groups share research priorities within diverse fields of healthcare and investigates whether these differences may jeopardize stakeholder engagement in research.
Involving consumers in a needs‐led research programme: a pilot project
  • S. Oliver, R. Milne, J. Gabbay
  • Medicine, Political Science
    Health expectations : an international journal of public participation in health care and health policy
  • 2001
TLDR
The methods used for involving consumers in a needs‐led health research programme are described and facilitators, barriers and goals are discussed.
Assessment of the benefits of user involvement in health research from the Warwick Diabetes Care Research User Group: a qualitative case study
TLDR
To assess the benefits of involving health‐care users in diabetes research, a large number of users were recruited from within and outside the health-care system.
Patients’ priorities concerning health research: the case of asthma and COPD research in the Netherlands
TLDR
Patients are increasingly involved in agenda setting within specific fields of healthResearch, but they rarely participate in decision‐making on the entire breadth of health research, including biomedical research.
...
1
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