• Corpus ID: 70457966

The PIRICOM study : a systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research

@inproceedings{Brett2010ThePS,
  title={The PIRICOM study : a systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research},
  author={J Brett and Sophie Staniszewska and Carole Mockford and Kate Seers and Sandy Herron-Marx and Helen R. Bayliss},
  year={2010}
}
• Aims: The specific aim of capturing or measuring impact of PPI must be included. • Results: State that impact has been assessed and report any key impacts. • 
ukcrc.org
166 Citations
Highly Influential Citations
15
Background Citations
54
Methods Citations
10
Results Citations
7

166 Citations

Citation Type

Citation Type

Values associated with public involvement in health and social care research: a narrative review
  • F. Gradinger, N. Britten, J. Popay
  • Medicine, Political Science
    Health expectations : an international journal of public participation in health care and health policy
  • 2015
TLDR
Underlying values are rarely made explicit despite the potential for these to have significant influence on the practice and assessment of PI.
Patient involvement in qualitative data analysis in a trial of a patient‐centred intervention: Reconciling lay knowledge and scientific method
TLDR
A pilot study of an intervention to facilitate patients’ agenda setting in clinical consultations to assess the extent to which patient and public involvement (PPI) could contribute to the process of qualitative data analysis (QDA).
Process and impact of patient involvement in a systematic review of shared decision making in primary care consultations
TLDR
The aim of this study was to investigate the process and impact of collaborating with members of a patient Research User Group on a systematic review about shared decision making around prescribing analgesia in primary care consultations.
Patient and service user engagement in research: a systematic review and synthesized framework
There is growing attention towards increasing patient and service user engagement (PSUE) in biomedical and health services research. Existing variations in language and design inhibit reporting and…
Frameworks for supporting patient and public involvement in research: Systematic review and co‐design pilot
  • T. Greenhalgh, L. Hinton, A. Chant
  • Medicine
    Health expectations : an international journal of public participation in health care and health policy
  • 2019
Numerous frameworks for supporting, evaluating and reporting patient and public involvement in research exist. The literature is diverse and theoretically heterogeneous.
Patient and public engagement in research and health system decision making: A systematic review of evaluation tools
  • A. Boivin, A. L’Espérance, J. Abelson
  • Medicine, Political Science
    Health expectations : an international journal of public participation in health care and health policy
  • 2018
TLDR
Reviews looking at evaluation tools for patient engagement in individual decision making do exist, but no similar articles in research and health systems have been published.
A critical analysis of the implementation of service user involvement in primary care research and health service development using normalization process theory
  • E. Tierney, R. McEvoy, A. MacFarlane
  • Medicine
    Health expectations : an international journal of public participation in health care and health policy
  • 2016
TLDR
This review focuses on current practice to critically interrogate factors known to be relevant for normalization – definition, enrolment, enactment and appraisal.
Evaluation of public involvement in research: time for a major re-think?
TLDR
Two alternative approaches are available for constructing and evaluating patient involvement, each of which requires us to revisit the purposes and values that underpin it in each stage of the research process.
Impact on the individual: what do patients and carers gain, lose and expect from being involved in research?
TLDR
This study explored how patients and carers in eight diagnostic research specialties have been involved in research, their motivations and the impact involvement had on them, including providing a life focus and an improved relationship with illness.
Developing the evidence base of patient and public involvement in health and social care research
TLDR
It is argued that service users should be collaboratively involved in the conceptualization, theorization and development of instruments to measure PPI impact, and the key advantages measurement would bring in strengthening the PPI evidence base.
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To assess the benefits of involving health‐care users in diabetes research, a large number of users were recruited from within and outside the health-care system.
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Patients are increasingly involved in agenda setting within specific fields of healthResearch, but they rarely participate in decision‐making on the entire breadth of health research, including biomedical research.
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