The National ALS Registry: a recruitment tool for research.

@article{Malek2014TheNA,
  title={The National ALS Registry: a recruitment tool for research.},
  author={Angela Marie Malek and David E Stickler and Vin{\'i}cius Cavalcanti dos Santos Ant{\~a}o and D. Kevin Horton},
  journal={Muscle & nerve},
  year={2014},
  volume={50 5},
  pages={830-4}
}
INTRODUCTION Subject recruitment is critical for understanding fatal diseases like ALS, however linking patients with researchers can be challenging. The U.S. population-based National ALS Registry allows recruitment of persons with ALS (PALS) for research opportunities. METHODS The Registry's Research Notification Mechanism was used to recruit PALS aged… CONTINUE READING