The Japan HOspice and Palliative Care Evaluation Study (J-HOPE Study): Study Design and Characteristics of Participating Institutions

  title={The Japan HOspice and Palliative Care Evaluation Study (J-HOPE Study): Study Design and Characteristics of Participating Institutions},
  author={Mitsunori Miyashita and Tatsuya Morita and Satoru Tsuneto and Kazuki Sato and Yasuo Shima},
  journal={American Journal of Hospice and Palliative Medicine{\textregistered}},
  pages={223 - 232}
This article describes the study design and background data of participating institutions in the Japan HOspice and Palliative care Evaluation (J-HOPE) study. [] Key Method The authors conducted a cross-sectional questionnaire survey in 2007. One hundred Japanese inpatient palliative care units and 14 home hospices participated. The questionnaires were sent to 7955 bereaved family members of the Japanese inpatient palliative care units and 447 of the home hospices.

Figures and Tables from this paper

Palliative care in Japan: a review focusing on care delivery system

  • T. MoritaY. Kizawa
  • Medicine, Political Science
    Current opinion in supportive and palliative care
  • 2013
Palliative care in Japan has progressed rapidly, and the Cancer Control Act has played a very important role in developing palliative medicine.

Evaluation of end-of-life cancer care from the perspective of bereaved family members: the Japanese experience.

  • M. MiyashitaT. MoritaK. Hirai
  • Medicine, Psychology
    Journal of clinical oncology : official journal of the American Society of Clinical Oncology
  • 2008
There is a need to extend the ongoing evaluation process to home care hospices and general hospitals, including cancer centers, identify the limitations of end-of-life care in all settings, and develop strategies to overcome them.

The Japan HOspice and Palliative Care Evaluation Study (J-HOPE Study): Views About Legalization of Death With Dignity and Euthanasia Among the Bereaved Whose Family Member Died at Palliative Care Units

Views about legalization of death with dignity and euthanasia among the bereaved in Japan are inconsistent and no consensus is reached as to legislation of these issues.

Care for the bodies of deceased cancer inpatients in Japanese palliative care units.

As the preferences for the care of deceased bodies are changing, end-of-life care needs to be improved with respect to culture, religious views, and the wishes of the patient and their family.

End-of-Life Medical Treatments in the Last Two Weeks of Life in Palliative Care Units in Japan, 2005-2006: A Nationwide Retrospective Cohort Survey.

Variations in end-of-life medical treatments increased between palliative care units as death neared, especially anticholinergic, artificial hydration, oxygen inhalation, and palliatives sedation use.

Preference of place for end-of-life cancer care and death among bereaved Japanese families who experienced home hospice care and death of a loved one

Home hospice services need to be developed in Japan so that family support programs can be initiated early enough to support the family burden of household maintenance and caring for the patient.



Current status of hospice cancer deaths both in-unit and at home (1995– 2000), and prospects of home care services in Japan

In Japan, the first government-approved hospice (GAH) and palliative care unit was established and commenced operations in 1990, and hospice medical care was made eligible for health insurance

Family satisfaction with inpatient palliative care in Japan

Whereas satisfaction is one of the most important outcomes in palliative care settings, there have been no systematic studies investigating the effects of family and organizationrelated variables on

Why are bereaved family members dissatisfied with specialised inpatient palliative care service? A nationwide qualitative study

This study identified the multiple sources of dissatisfaction with specialized inpatient palliative care for bereaved families and these findings could be useful in developing a more desirable system of specialised in Patient Palliative Care in Japan.

The current status of bereavement follow-up in hospice and palliative care in Japan

It is concluded that it is necessary to develop bereavement care programmes based on common, basic hospice care tenets while making full use of existing local resources and taking into account regional values.

Good death in Japanese cancer care: a qualitative study.

Barriers to providing palliative care and priorities for future actions to advance palliative care in Japan: a nationwide expert opinion survey.

A survey to identify existing barriers from the point of view of palliative care experts in Japan and determine the priorities for future actions to overcome them suggested that to overcome these barriers, one needs to take action on many fronts, including increasing social awareness and effecting political change.

A scale to measure satisfaction of bereaved family receiving inpatient palliative care

This 34-item scale, the Satisfaction Scale for Family Members Receiving Inpatient Palliative Care (Sat-Fam-IPC), has acceptable psychometric properties and would be a useful tool to measure carer satisfaction with an inpatient palliative care service.

Measuring the quality of structure and process in end-of-life care from the bereaved family perspective.

In Search of a Good Death: Observations of Patients, Families, and Providers

This study describes the attributes of a good death, as understood by various participants in end-of-life care, and compared the perspectives of different groups of persons who had experienced death in their personal or professional lives.

Good death in cancer care: a nationwide quantitative study.

BACKGROUND The aims of this study were to (i) conceptualize dimensions of a good death in Japanese cancer care, (ii) clarify the relative importance of each component of a good death and (iii)