The Health Insurance Portability and Accountability Act of 1996 (HIPAA) privacy rule: implications for clinical research.

@article{Nosowsky2006TheHI,
  title={The Health Insurance Portability and Accountability Act of 1996 (HIPAA) privacy rule: implications for clinical research.},
  author={Rachel Nosowsky and Thomas J. Giordano},
  journal={Annual review of medicine},
  year={2006},
  volume={57},
  pages={
          575-90
        }
}
In the short time since it became effective for health care organizations, a privacy regulation issued under the Health Insurance Portability and Accountability Act of 1996 (HIPAA) has had a significant adverse impact on the conduct of clinical research in the United States, without a substantial corresponding increase in privacy protection for research participants. Some of the problems associated with HIPAA have been resolved through revisions since the regulation's initial promulgation in… CONTINUE READING

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