The Haemo-QoL Index: developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia.

@article{Pollak2006TheHI,
  title={The Haemo-QoL Index: developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia.},
  author={Eva Pollak and Holger Muehlan and Sylvia von Mackensen and Monika Bullinger},
  journal={Haemophilia : the official journal of the World Federation of Hemophilia},
  year={2006},
  volume={12 4},
  pages={384-92}
}
As quality of life (QoL) research is increasingly focusing on children and adolescents with haemophilia, the need for both age-appropriate and disease-specific assessment tools becomes apparent. Therefore, a set of questionnaires measuring QoL in children and adolescents with haemophilia was simultaneously developed in six languages within the European Haemo-QoL project (Haemophilia, 8, 2002, 47; Haemophilia, 10, 2004, 17). For implementation in larger studies and for use in daily clinical… CONTINUE READING

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