The Geneticization of Autism: From New Reproductive Technologies to the Conception of Genetic Normalcy

@article{Bumiller2009TheGO,
  title={The Geneticization of Autism: From New Reproductive Technologies to the Conception of Genetic Normalcy},
  author={Kristin Bumiller},
  journal={Signs: Journal of Women in Culture and Society},
  year={2009},
  volume={34},
  pages={875 - 899}
}
  • Kristin Bumiller
  • Published 1 June 2009
  • Biology
  • Signs: Journal of Women in Culture and Society
This article examines how biomedicalization, the turn toward utilizing science for enhanced control over the body and the expanded reach of medical technologies in everyday life, has influenced divergent strategies among activists concerned about autism. It shows how divisive conflicts emerge from biological uncertainties about the etiology of autism. But it also suggests how these divisions among activists reflect deeper issues about the role of biomedical knowledge in shaping our… 

From the Profound to the Mundane: Questionnaires as Emerging Technologies in Autism Genetics

TLDR
This paper shows that in the case of autism, the effects of genomic technologies can only be understood by simultaneously examining the role of questionnaires, and argues that questionnaires such as the Autism Quotient have a significance that surpasses the genomic classifications they were designed to undergird.

The trading zone of autism genetics: Examining the intersection of genomic and psychiatric classification

This article argues that the impact of genetics on psychiatry, and on our understanding of human difference more generally, will be mediated by the threefold social role of diagnostic categories as

Looping Genomes: Diagnostic Change and the Genetic Makeup of the Autism Population1

TLDR
A looping process that began with geneticization and involved the social effects of genetics research itself transformed the autism population and its genetic makeup.

The ethics of complexity. Genetics and autism, a literature review

  • K. HensH. PeetersK. Dierickx
  • Philosophy
    American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics
  • 2016
TLDR
Because of the complexity of autism, and the uncertainty with regard to its status, more ethical reflection is needed before definite conclusions and recommendations can be drawn, and there is a dearth of bioethical empirical studies querying the opinions of all parties, including people with autism themselves.

Race, Gender, and Genetic Technologies: A New Reproductive Dystopia?

  • D. Roberts
  • Sociology
    Signs: Journal of Women in Culture and Society
  • 2009
In the 1980s, Margaret Atwood, Gena Corea, and other feminists envisioned dystopias in which wealthy white women’s reproduction was valued and privileged and women of color’s reproduction was

Epigenetic life: biological plasticity, abnormality, and new configurations of race and reproduction

TLDR
It is found that epigenetics is contributing to a new biological (yet non-determinist) ontology of race and that the fetus and reproductive women are emerging as the central figures in this new epigenetic model ofrace and bodily plasticity.

Autism

Autism

The concept of autism is historically contingent. It did not exist, in any proper sense, before it was invoked by medical and mental health professionals in the twentieth century. This entry aims to

Autism

  • D. Shalom
  • Philosophy
    Pediatric Clinical Practice Guidelines & Policies
  • 2013
The concept of autism is historically contingent. It did not exist, in any proper sense, before it was invoked by medical and mental health professionals in the twentieth century. This entry aims to

Autism

The concept of autism is historically contingent. It did not exist, in any proper sense, before it was invoked by medical and mental health professionals in the twentieth century. This entry aims to
...

References

SHOWING 1-10 OF 97 REFERENCES

The next exclusion debate: assessing technology, ethics, and intellectual disability after the Human Genome Project.

TLDR
The ethical and social implications of the Human Genome Project for individuals with intellectual disabilities and their families are examined and the critique of prenatal testing articulated by many disability rights activists is detailed.

Mouse models of autism spectrum disorders: The challenge for behavioral genetics

TLDR
There remains a critical need for appropriate animal models and relevant behavioral assays to promote the understanding and treatment of the clinical syndrome, and challenges for the development of valid mouse models include complex genetic interactions underlying the high heritability of the disease in humans.

Schizophrenia and the Narrative of Enlightened Geneticization

TLDR
The way in which scientists attempt to construct schizophrenia as a genetic disease using various discursive strategies produces a `narrative' about schizophrenia which subtly prioritizes genetic explanations, while appearing to allow a rôle for non-genetic factors.

Molecular genetics of autism spectrum disorders

  • B. Shastry
  • Psychology, Biology
    Journal of Human Genetics
  • 2003
TLDR
The identification of autism genes, an understanding of the neurobiology of the condition, and additional clinical studies may help to develop pharmacological interventions in the future.

Race, Gender, and Genetic Technologies: A New Reproductive Dystopia?

  • D. Roberts
  • Sociology
    Signs: Journal of Women in Culture and Society
  • 2009
In the 1980s, Margaret Atwood, Gena Corea, and other feminists envisioned dystopias in which wealthy white women’s reproduction was valued and privileged and women of color’s reproduction was

Attitudes about Genetics in Underserved, Culturally Diverse Populations

Objective: New medical discoveries regarding genetic susceptibility to common chronic diseases, and the decoding of the human genome have increased public attention to genetics. What information is

Genetics of autism.

  • E. Cook
  • Medicine
    Child and adolescent psychiatric clinics of North America
  • 2001

Making Parents: The Ontological Choreography of Reproductive Technologies

Assisted reproductive technology (ART) makes babies and parents at once. Drawing on science and technology studies, feminist theory, and historical and ethnographic analyses of ART clinics, Charis

Prenatal genetic testing and screening: constructing needs and reinforcing inequities.

  • A. Lippman
  • Medicine
    American journal of law & medicine
  • 1991
TLDR
The reassurance, choice and control supposedly provided by prenatal genetic testing and screening are critically examined, and their role in constructing the need for such technology is addressed.

The Drama and Trauma of Creating Policies on Autism

TLDR
The authors argue that the service delivery system should include a range of public and private agencies with a shared obligation for services to children with autism and propose the creation of a community-based mechanism for pooled funding of high-cost services.
...