The Experience of Families With Children With Trisomy 13 and 18 in Social Networks

@article{Janvier2012TheEO,
  title={The Experience of Families With Children With Trisomy 13 and 18 in Social Networks},
  author={A. Janvier and Barbara Farlow and B. Wilfond},
  journal={Pediatrics},
  year={2012},
  volume={130},
  pages={293 - 298}
}
  • A. Janvier, Barbara Farlow, B. Wilfond
  • Published 2012
  • Medicine
  • Pediatrics
  • BACKGROUND: Children with trisomy 13 and trisomy 18 (T13-18) have low survival rates and survivors have significant disabilities. For these reasons, interventions are generally not recommended by providers. After a diagnosis, parents may turn to support groups for additional information. METHODS: We surveyed parents of children with T13-18 who belong to support groups to describe their experiences and perspectives. RESULTS: A total of 503 invitations to participate were sent and 332… CONTINUE READING
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