The Ethics of Medical Data Donation

@article{Krutzinna2019TheEO,
  title={The Ethics of Medical Data Donation},
  author={Jenny Krutzinna and L. Floridi},
  journal={Philosophical Studies Series},
  year={2019}
}
While donation schemes with dedicated regulatory frameworks have made it relatively easy to donate blood, organs or tissue, it is virtually impossible to donate one’s own medical data. The lack of appropriate framework to govern such data donation makes it practically difficult to give away one’s data, even when this would be within the current limits of the law. Arguments for facilitation of such a process have been advanced but so far have not been implemented. Discussions on the ethics of… 

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