The Development of iManageCancer: The Experience of a Personalised eHealth Platform for Cancer Patients’ Empowerment

@inproceedings{Crico2019TheDO,
  title={The Development of iManageCancer: The Experience of a Personalised eHealth Platform for Cancer Patients’ Empowerment},
  author={Chiara Crico and Chiara Renzi},
  year={2019}
}
Advances in cancer research led to more cancer patients being cured and many more being enabled to live with their cancer. There is an increasing need for cancer patients to take an active, leading role in their healthcare, thus resulting in a better quality of life. Identification of self-management processes for cancer can help to guide future research and clinical practice to improve patient’s outcome. In the present chapter, we discuss the development of iManageCancer, a cancer-specific… 
1 Citations
Internet of things based distributed healthcare systems: a review
TLDR
A comparative study of these IoT-DHSs is made to know the suitability of various healthcare systems, and the taxonomy of these systems is proposed considering various aspects such as monitoring methods, communication technologies, computing techniques and low-power protocols.

References

SHOWING 1-10 OF 22 REFERENCES
iManageCancer: Developing a Platform for Empowering Patients and Strengthening Self-Management in Cancer Diseases
TLDR
This paper presents the use-case requirements collected using a survey, a workshop and the analysis of three white papers, and describes in detail the main technological components of the designed platform.
MyHealthAvatar lifestyle management support for cancer patients
TLDR
Two different MHA-based Android applications for breast and prostate cancer patients are presented, which facilitate health and lifestyle data presentation and analysis, including weight control, activity, mood and sleep data collection, promotion of physical exercise after surgery, questionnaires and helpful information.
Development of an eHealth tool for cancer patients: monitoring psycho-emotional aspects with the Family Resilience (FaRe) Questionnaire
TLDR
A new family resilience questionnaire (named FaRe) was developed to screen the patient's and caregiver's psycho-emotional resources and allows users and clinicians to monitor the patient and the caregivers' resilience throughout the cancer trajectory.
Personalised medicine: the cognitive side of patients.
TLDR
There are substantial individual differences among patients; therefore, it is important that physicians recognise how to apply general recommendations to each individual patient, alongside the omic information emerging from the molecular diagnostic laboratory.
The role of serious games in the iManageCancer project
TLDR
Two serious games were developed to support adult and young cancer patients with serious games to manage the impact of the disease on their psychological status, such as negative emotions, anxiety or depression, and motivate them to stay positive and to participate in social life.
Development and psychometric testing of a breast cancer patient-profiling questionnaire
TLDR
The ALGA-BC questionnaire with 29 items is a valid instrument with which to obtain a patient’s profile that is supposed to help physicians achieve meaningful personalized care which supplements biological and genetic analyses.
The psychological impact of cancer on patients' partners and other key relatives: a review.
TLDR
The review discusses why carers fail to take advantage of interventions designed to help them and those who participate derive only limited psychological benefits.
A P5 cancer medicine approach: why personalized medicine cannot ignore psychology.
TLDR
It is proposed that P4 medicine should be transformed into P5 medicine, where the fifth P represents the psycho-cognitive aspects to be considered in order to empower the patient, increase his/her quality of life and transform him/her from a passive recipient into an active decision-maker in the treatment process.
Cancer: a family at risk
TLDR
The nature of caregiving to a patient with cancer and the biggest concerns for the family are described.
The choice dilemma in chronic hematological conditions: Why choosing is not only a medical issue? A psycho-cognitive perspective.
TLDR
A patient centered model and a shared decision making (SDM) approach to treatment switch in chronic hematological conditions, in particular chronic myeloid leukemia, atrial fibrillation, and β-thalassemia is proposed and implications relatively to new treatment options available are discussed.
...
1
2
3
...