Telling Their Stories, Telling Our Stories
@article{Madjar2007TellingTS,
title={Telling Their Stories, Telling Our Stories},
author={Irena Madjar and Lea Kacen and Samuel Ariad and Jim Denham},
journal={Qualitative Health Research},
year={2007},
volume={17},
pages={428 - 441}
}There is currently very little research on how physicians respond to patients with cancer who decide to forgo or stop medically recommended “curative” therapy. The purpose of this article is to report on a qualitative study with 12 oncology specialists in Israel and Australia that addresses this question. The findings indicate that physicians tend to construct patients and their decisions in terms of mutually exclusive categories that focus on curability of the disease, rationality of the…
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References
SHOWING 1-10 OF 21 REFERENCES
The medical practice of patient autonomy and cancer treatment refusals: a patients' and physicians' perspective.
- Medicine, Political ScienceSocial science & medicine
- 2004
The results show that the extent of pressure physicians will exert to persuade the patient to be treated as recommended depends on the medical distinction between a curative and a non-curative treatment goal.
The medical practice of patient autonomy and cancer treatment refusals: a patients' and physicians' perspective.
- Medicine, Political Science
- 2004
Cancer Patients’ Views and Experiences of Participation in Care and Decision Making
- Medicine, PsychologyNursing ethics
- 2001
The results revealed considerable variation in the patients’ views on their participation in care and decision making; factors restricting such patient participation were poor health, ignorance, anxiety, age, time pressures of staff, lack of time, high staff turnover and poor interactive relationships.
Physicians’ evaluations of patients’ decisions to refuse oncological treatment
- Medicine, Political Science
- 2005
In the case of non-curative treatment refusal, physicians give more emphasis to value oriented rationality, which contributes to the patient's feeling free to decide, and being understood and respected, and thus to a better physician–patient relationship.
Patient centered decision making in palliative cancer treatment: a world of paradoxes.
- Medicine, PsychologyPatient education and counseling
- 2003
Factors in making the decision to forgo conventional cancer treatment.
- MedicineCancer practice
- 2002
Why and how patients with cancer decide to forgo conventional cancer treatments in favor of alternative treatments and which factors influence such decisions are explored.
When competent patients make irrational choices.
- MedicineThe New England journal of medicine
- 1990
A discussion of this issue requires a taxonomy of the different sources and forms of irrational decision making, and it is believed that the bias toward the present should be included.
When patients refuse assessment of decision-making capacity: how should clinicians respond?
- MedicineArchives of internal medicine
- 2004
It is argued that although it cannot be concluded that patients who refuse beneficial treatment are incompetent, there are reasons to treat them as if they were and points to several obligations for clinicians before such a situation can be said to exist.
What part of "no" don't you understand? Patient refusal of recommended treatment in the emergency department.
- Medicine, Political ScienceThe Mount Sinai journal of medicine, New York
- 2005
The ethical and legal principles for determining decision-making capacity and assuring that refusal is informed are described, and an algorithm for responding to patient refusals is presented.
On the dilemma of enigmatic refusal of life-saving therapy.
- Medicine, PsychologyChest
- 2004
It is argued that there is a duty to assess the patient's decision-making capacity, as well as attempt to understand a patient's reason(s) for refusing treatment, while some patients may not readily offer reasons for refusal treatment.