Symptoms and suffering at the end of life in children with cancer: an Australian perspective

@article{Heath2010SymptomsAS,
  title={Symptoms and suffering at the end of life in children with cancer: an Australian perspective},
  author={John A Heath and Naomi E Clarke and Sue Donath and Maria C. McCarthy and Vicki Anderson and Joanne Wolfe},
  journal={Medical Journal of Australia},
  year={2010},
  volume={192}
}
OBJECTIVE To examine the symptoms, level of suffering, and care of Australian children with cancer at the end of life. [] Key MethodDESIGN, SETTING AND PARTICIPANTS In a study conducted at the Royal Children's Hospital, Melbourne, parents of children who had died of cancer over the period 1996-2004 were interviewed between February 2004 and August 2006. Parents also completed and returned self-report questionnaires.
Palliative Care in Pediatric Oncology
This textbook is the first to focus on comprehensive interdisciplinary care approaches aimed at enhancing the wellbeing of children with cancer and their families throughout the illness experience.
Easing of Physical Distress in Pediatric Cancer
Easing physical distress is a major focus in the practice of palliative care in a child with malignancy throughout the disease course from diagnosis to cure and survivorship or death.
Disparities in intensity of treatment at end‐of‐life among children according to the underlying cause of death
TLDR
To compare indicators of high‐intensity treatment at end‐of‐life (HI‐EOL) among children according to causes of death, a large number of indicators are compared according to cause of death.
Full circle: Resolving an adolescent's end‐of‐life issues
We report the challenges in managing a troubled, medically ill adolescent with end‐of‐life issues. Our role as multi‐professional service providers complemented the family's efforts to help him
Epidemiology of Suffering in Childhood Cancer
TLDR
Integration of palliative care with oncology care leads to better symptom control and improved quality of life in children with advanced cancer and may impact on long-term health of family members.
Development of a quality of life instrument for children with advanced cancer: The pediatric advanced care quality of life scale (PAC‐QoL)
TLDR
The first two phases in the development of the pediatric advanced care‐quality of life scale (PAC‐QoL) are described, which comprehensively capture quality of life symptoms for children with poor‐prognosis malignancies.
Palliative care service in patients with childhood cancer from a tertiary pediatric oncology center
TLDR
There are gaps in knowledge about the PPC needs in local children with cancer, and data on Hong Kong children receiving PPC are limited.
Unrealistic parental expectations for cure in poor‐prognosis childhood cancer
TLDR
No pediatric studies to date have prospectively evaluated prognosis communication or influences on decision making in poor‐prognosis childhood cancer.
The experience of parents living with a child with cancer at the end of life.
TLDR
Healthcare providers must address the core value of palliative care and help parents accept the reality of their child's situation at an earlier stage in order to provide a better quality of life for the child.
Impact of a multi‐professional expert team on EOL care of children with cancer
TLDR
The impacts of the outreach activities by the MET on Q‐EOL care of pediatric oncology patients are investigated.
...
...

References

SHOWING 1-10 OF 21 REFERENCES
Analysis of the circumstances at the end of life in children with cancer: Symptoms, suffering and acceptance
TLDR
The signs and symptoms at the end of life in children with cancer are analyzed to improve the quality of life and contribute to the development of appropriate programs to address the challenges faced by these children.
Symptoms in the palliative phase of children with cancer
The aim of the study was to make a comprehensive inventory of the physical, psychological, and social symptoms of children with cancer and their parents during the palliative phase and the extent to
Analysis of the circumstances at the end of life in children with cancer: A single institution's experience in Japan
TLDR
This study presents an analysis of one hospital's experience with terminal care, which aims to improve the quality of life of children with cancer.
The dying child: how is care different?
Of children needing palliative care, less than half have a malignancy. Most families will elect to care for their child at home if this is offered as a realistic option. The often protracted and
Home care for children dying of cancer.
TLDR
It is suggested that home care at the end stage of life is a viable alternative for children dying of cancer and for their families.
The symptoms of dying children.
Early integration of pediatric palliative care: for some children, palliative care starts at diagnosis
TLDR
Early integration of palliative care can allow children and families to make decisions about care that fit with their values, and should become a standard of care for all children with life-threatening illnesses.
Expanding the Boundaries of Palliative Care: An Australian Perspective
  • L. Kristjanson
  • Medicine, Political Science
    Journal of palliative care
  • 2005
I n Australia, over the past three decades, interest in improving the care of dying patients has progressed from being the concern of a few health care professionals to being a widespread social
Symptoms Affecting Children With Malignancies During the Last Month of Life: A Nationwide Follow-up
TLDR
The most frequently reported symptoms in children with malignancies to be aware of and possibly address during the terminal phase are physical fatigue, reduced mobility, pain, and decreased appetite.
Terminal care of the child with cancer at home
TLDR
The system of terminal care at home proved satisfactory for the child and the whole family in many different respects, and for successful home care, the parents need continuous supervision, help and support by well‐trained personnel.
...
...