Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers

@article{Cans2000SurveillanceOC,
  title={Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers},
  author={Christine Cans},
  journal={Developmental Medicine \& Child Neurology},
  year={2000},
  volume={42}
}
  • C. Cans
  • Published 2000
  • Medicine
  • Developmental Medicine & Child Neurology
Although cerebral palsy (CP) is the most common cause of motor deficiency in young children, it occurs in only 2 to 3 per 1000 live births. In order to monitor prevalence rates, especially within subgroups (birthweight, clinical type), it is necessary to study large populations. A network of CP surveys and registers was formed in 14 centres in eight countries across Europe. Differences in prevalence rates of CP in the centres prior to any work on harmonization of data are reported. The… Expand
Epidemiology of Cerebral Palsy in Northeastern Switzerland
TLDR
This pilot study demonstrated the feasibility and usefulness of creating a registry of children affected by CP in one Swiss canton, and comparable with data of the Surveillance of Cerebral Palsy in Europe network. Expand
Prevalence and characteristics of children with cerebral palsy in Europe
TLDR
A central database was set up to include information on over 6000 children with cerebral palsy from 13 geographically defined populations in Europe, providing a powerful means of monitoring trends in birth weight‐specific rates of CP and an infrastructure for research and service planning. Expand
Cerebral palsy registries.
TLDR
CP registers are useful to clinicians by enabling them to identify subgroups of children requiring specific etiologic investigations, and also to provide more accurate information to the parents of children with CP. Expand
Cerebral palsy in Norway: prevalence, subtypes and severity.
TLDR
Compared with other populations, the prevalence of CP as well as the proportions of subtypes and gross motor impairments were similar, whereas fineMotor impairments and associated impairments are more common and classification of children with mixed forms of CP is still a challenge. Expand
Review article Cerebral palsy update
A common language on CP has been developed for the European registers by the SCPE (Surveillance of Cerebral Palsy in Europe) working group and the common database allows prevalence analyses on aExpand
Cerebral palsy update
TLDR
A common language on CP has been developed for the European registers by the SCPE working group and the common database allows prevalence analyses on a larger basis, and the outcome with respect to CP in the group of extremely LBW or immature infants remains a matter of specific concern, as prevalence seems to be rather stable on a high level. Expand
Counting cases of cerebral palsy
  • M. Platt
  • Medicine
  • Developmental medicine and child neurology
  • 2017
Toyokawa et al. use secondary analysis of data to estimate the prevalence of cerebral palsy (CP) in Japan, to compare with estimates from elsewhere, and to aid in ensuring that appropriate servicesExpand
Prevalence of cerebral palsy in the West of Ireland 1990-1999.
An ongoing population-based register of cerebral palsy (CP) in the West of Ireland was established in 2002 to calculate the prevalence of CP and to monitor CP epidemiological trends in the area.Expand
Protocol for the Sri Lankan Cerebral Palsy Register pilot study
TLDR
A pilot study protocol for a CP register is described and the strengths and challenges of the surveillance mechanisms and the resources required for ongoing hospital and community based surveillance in the Western and Eastern provinces are estimated to include additional provinces across the country. Expand
Prevalence of cerebral palsy in the West of Ireland 1990–1999
An ongoing population‐based register of cerebral palsy (CP) in the West of Ireland was established in 2002 to calculate the prevalence of CP and to monitor CP epidemiological trends in the area.Expand
...
1
2
3
4
5
...

References

SHOWING 1-10 OF 64 REFERENCES
Validation of a cerebral palsy register.
TLDR
Completeness of the Cerebral Palsy Register in Denmark, 1979-1982 has been assessed to maximal 85%, emphasizing the impact of using supplementary case ascertainment sources in the future. Expand
Comparison of mortality and rates of cerebral palsy in two populations of very low birthweight infants.
TLDR
Differences in registration practice of live births at early gestational ages, as well as differences in withholding or withdrawing treatment, may have influenced the incidence of registered live births, neonatal mortality, and the rate of cerebral palsy. Expand
The changing epidemiology of cerebral palsy.
TLDR
The prevalence of cerebral palsy has increased among all the low birthweight groups with, most recently, an increase in infants weighing < 1000 g at birth, which has implications for the aetiology of the condition, and for health, educational, and social service provision. Expand
A regional register of early childhood impairments: a discussion paper. The Steering Committee of the Oxford Region Child Development Project.
A regional register of preschool children with cerebral palsy, severe vision loss and sensorineural deafness has been complied. Case definition, the threshold for including or excluding a case and aExpand
Increase in cerebral palsy in normal birthweight babies.
TLDR
The overall congenital cerebral palsy rate showed a gradual rise between 1968 and 1975 and there was a rise in incidence among the subgroup of patients with severe cerebral palsY (as defined by an interval measurement of handicap) during the same period. Expand
[Congenital cerebral paresis in Eastern Denmark, the year of birth between 1971-1982].
TLDR
An increased proportion with birthweight under 2500 g and neuroimpairment was found in the latest birth year period and a re-evaluation of diagnostic information confirmed the increasing trend of the prevalence. Expand
BILATERAL SPASTIC CEREBRAL PALSY—A COMPARATIVE STUDY BETWEEN SOUTHWEST GERMANY AND WESTERN SWEDEN. I: CLINICAL PATTERNS AND DISABILITIES
TLDR
The authors conclude that the two series of bilateral spastic cerebral palsy between south‐west Germany and western Sweden were comparable, and that reliable results between countries can be obtained if clear‐cut classifications and definitions are used. Expand
Cerebral palsy: social class differences in prevalence in relation to birthweight and severity of disability.
TLDR
The clear social class gradients in hemiplegia and diplegia suggest that environmental factors play an important role in the aetiology of these syndromes, but there was no evidence of a contribution from this type of factor in the remaining types of cerebral palsy. Expand
TERMINOLOGY AND CLASSIFICATION OF CEREBRAL PALSY
  • M. Bax
  • Medicine
  • Developmental medicine and child neurology
  • 1964
TLDR
The group reached agreement on a definition of cerebral palsy, but ran into difficulties after this and ran into considerable difficulty when they went on to discuss the classification of various types of cerebral paresis. Expand
The California Cerebral Palsy Project.
The California Cerebral Palsy Project (CACP) is a population-based study of 192 children with moderate or severe congenital cerebral palsy who were born between 1983 and 1985 in four San FranciscoExpand
...
1
2
3
4
5
...