Support needs for medication use and the suitability of eHealth technologies to address these needs: a focus group study of older patients with rheumatoid arthritis

@article{Mathijssen2018SupportNF,
  title={Support needs for medication use and the suitability of eHealth technologies to address these needs: a focus group study of older patients with rheumatoid arthritis},
  author={Elke G E Mathijssen and Johanna E Vriezekolk and Agnes Eijsbouts and Frank H. J. van den Hoogen and Bart J. F. van den Bemt},
  journal={Patient preference and adherence},
  year={2018},
  volume={12},
  pages={349 - 358}
}
Objective The objectives of this study were to explore the needs of patients with rheumatoid arthritis (RA) regarding support for medication use and to gain insight into their perspective on the suitability of eHealth technologies to address these needs. Methods Three focus groups were conducted with 28 patients with RA. Audio recordings made during the focus groups were transcribed verbatim. Two researchers independently performed an inductive, thematic analysis on the data (ie, the… 

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References

SHOWING 1-10 OF 60 REFERENCES

Tying eHealth Tools to Patient Needs: Exploring the Use of eHealth for Community-Dwelling Patients With Complex Chronic Disease and Disability

TLDR
There is a significant potential for eHealth tools to support patients with CCDD in community and primary care settings, but the authors need to be wary of the potential downfalls of adopting eHealth technologies and pay special attention to patient-identified needs and concerns.

Attitudes towards the use and acceptance of eHealth technologies: a case study of older adults living with chronic pain and implications for rural healthcare

TLDR
seHealth has the potential to overcome some traditional challenges of providing rural healthcare, however roll out needs to be gradual and begin by supplementing, not substituting, existing care and should be mindful of individual’s circumstances, capability and preferences.

Unmet needs in the medication use process: perceptions of physicians, pharmacists, and patients.

TLDR
Addressing the unmet needs identified in this study will require better understanding, communication, and collaboration among physicians, pharmacists, and patients.

The influence of behavioural and psychological factors on medication adherence over time in rheumatoid arthritis patients: a study in the biologics era

TLDR
The psychological factors identified are putative targets for strategies to improve adherence in RA and wider recognition of the importance of psychological factors, particularly medication beliefs, in driving medication adherence could have substantial clinical and health economic benefits in RA.

Measuring educational needs among patients with rheumatoid arthritis using the Dutch version of the Educational Needs Assessment Tool (DENAT)

TLDR
The DENAT has demonstrated its ability to identify individual educational needs of Dutch patients with rheumatoid arthritis and the lower age and shorter disease duration were associated with more educational needs.

Specificity of Social Support for Back Pain Patients: Do Patients Care Who Provides What?

TLDR
The findings suggest that the desirability of different types of social support varies as a function of the source of support and indicate that physical therapists are perceived by back pain patients as particularly helpful in their provision of socialSupport.

EULAR recommendations for patient education for people with inflammatory arthritis

TLDR
The eight evidence-based and expert opinion-based recommendations for PE for people with inflammatory arthritis are intended to provide a core framework for the delivery of PE and training for health professionals in delivering PE across Europe.

Need for information and for involvement in decision making among patients with rheumatoid arthritis: a questionnaire survey.

TLDR
There was a high level of need for information and desire for involvement in treatment decision making among patients with RA, and associations with these needs differed for men and women.
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