Stigma and Genetic Risk: Perceptions of Stigma among Those at Risk for Huntington Disease (HD)

  title={Stigma and Genetic Risk: Perceptions of Stigma among Those at Risk for Huntington Disease (HD)},
  author={Holly Etchegary},
  journal={Qualitative Research in Psychology},
  pages={65 - 84}
  • H. Etchegary
  • Published 7 August 2007
  • Psychology
  • Qualitative Research in Psychology
Advances in molecular genetics raise concerns about the potential for stigmatization of people at risk for genetic disorders. However, minimal research explores stigma from the perspective of people who live with genetic risk. Drawing upon 24 semi-structured interviews with at-risk people and their family members, this study explored perceptions of stigma in the context of Huntington disease (HD), a fatal genetic illness. Qualitative data analysis revealed four perceptions of stigma: 1… 
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    International journal of psychiatry in medicine
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