Standards for epidemiologic studies and surveillance of epilepsy
@article{Thurman2011StandardsFE, title={Standards for epidemiologic studies and surveillance of epilepsy}, author={David J Thurman and Ettore Beghi and Charles Begley and Anne T. Berg and Jeffrey R Buchhalter and Ding Ding and Dale C. Hesdorffer and Willard A Hauser and Lewis E. Kazis and Rosemarie Kobau and Barbara L Kroner and David M Labiner and Kore Kai Liow and Giancarlo Logroscino and M. T. Medina and Charles Rjc Newton and Karen L. Parko and Angelia M. Paschal and Pierre-Marie Preux and Josemir W Sander and Anbesaw Wolde Selassie and William H. Theodore and Torbj{\"o}rn Tomson and Samuel Wiebe}, journal={Epilepsia}, year={2011}, volume={52} }
Worldwide, about 65 million people are estimated to have epilepsy. Epidemiologic studies are necessary to define the full public health burden of epilepsy; to set public health and health care priorities; to provide information needed for prevention, early detection, and treatment; to identify education and service needs; and to promote effective health care and support programs for people with epilepsy. However, different definitions and epidemiologic methods complicate the tasks of these…
805 Citations
Surveillance of epilepsy and prevention of epilepsy and its sequelae: lessons from the Institute of Medicine report.
- Medicine, PsychologyCurrent opinion in neurology
- 2013
Future epilepsy surveillance should track incidence and prevalence over time, access to epilepsy care, direct and indirect costs, and the cost-effectiveness of treatment.
CDC-supported epilepsy surveillance and epidemiologic studies: A review of progress since 1994
- Medicine, PsychologyEpilepsy & Behavior
- 2020
Epilepsy in adults and access to care--United States, 2010.
- Medicine, PsychologyMMWR. Morbidity and mortality weekly report
- 2012
To determine epilepsy prevalence among adults, assess their access to care, and provide baseline estimates for a Healthy People 2020 objective, CDC analyzed data from the 2010 National Health Interview Survey.
Prevalence and incidence of epilepsy in the Nordic countries.
- Medicine, PsychologyTidsskrift for den Norske laegeforening : tidsskrift for praktisk medicin, ny raekke
- 2015
It is estimated that approximately 0.6% of the population of the Nordic countries have active epilepsy, i.e. approximately 30,000 persons in Norway, one of the most common neurological disorders.
Incidence and Prevalence of Childhood Epilepsy: A Nationwide Cohort Study
- Medicine, PsychologyPediatrics
- 2017
About 1 out of 150 children is diagnosed with epilepsy during the first 10 years of life, with the highest incidence rate observed during infancy, in the Norwegian Mother and Child Cohort Study.
Validation of healthcare administrative data for the diagnosis of epilepsy
- Medicine, PsychologyJournal of Epidemiology & Community Health
- 2013
A diagnostic algorithm including EEG and selected treatment schedules is only moderately sensitive for the detection of epilepsy and seizures.
Prevalence and incidence of epilepsy
- Medicine, PsychologyNeurology
- 2017
This study provides a comprehensive synthesis of the prevalence and incidence of epilepsy from published international studies and offers insight into factors that contribute to heterogeneity between estimates.
Epidemiology of Epilepsy in Korea
- Medicine, Psychology
- 2020
Only a few epidemiological studies of epilepsy have been conducted in Korea, and those studies and related issues regarding epidemiological research on epilepsy are discussed.
Definition, Classification, and Burden of Epilepsy
- Medicine, PsychologyEpilepsy - Update on Classification, Etiologies, Instrumental Diagnosis and Treatment
- 2020
Early epilepsy diagnosis and proper anti-epileptic treatment usually result in satisfactory seizure control, and enable persons with epilepsy to lead a normal life.
References
SHOWING 1-10 OF 229 REFERENCES
Guidelines for Epidemiologic Studies on Epilepsy
- MedicineEpilepsia
- 1993
The proposed guidelines represent a consensus between epileptologists and epidemiologists and are presented in four parts: Definition of seizures and epilepsy, (b) seizure type classification, (c) risk factors; and (d) recommended measurement indexes.
Recent developments in the epidemiology of epilepsy
- Medicine, PsychologyActa neurologica Scandinavica. Supplementum
- 1995
Although a number of factors are often identified as causes of epilepsy, studies have identified a definitive aetiology in only one‐third of all newly diagnosed cases, epidemiological studies have confirmed the importance of postnatal insults and quantified the risk.
The epidemiology of epilepsy revisited
- MedicineCurrent opinion in neurology
- 2003
There is geographic variation in the incidence of epileptic syndromes likely to be associated with genetic and environmental factors, although as yet causality has not been fully established.
Understanding the burden of epilepsy in Latin America: A systematic review of its prevalence and incidence
- MedicineEpilepsy Research
- 2005
Burden of Epilepsy: The Ontario Health Survey
- Medicine, PsychologyCanadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques
- 1999
The health profile of self-reported epileptic subjects is similar to that obtained in studies involving defined epilepsy patients, and in the general population, self-identification as having epilepsy carries a significant burden of illness, reflected in poorer health, psychosocial function, and quality of life, and higher health care resource use.
Epidemiology, aetiology, and clinical management of epilepsy in Asia: a systematic review
- MedicineThe Lancet Neurology
- 2007
Methodologic Issues in Studies of Mortality Following Epilepsy: Measures, Types of Studies, Sources of Cases, Cohort Effects, and Competing Risks
- Medicine, PsychologyEpilepsia
- 2005
It is concluded that the gold standard for studies on mortality should be a population‐based cohort of incident cases, because this type of cohort permits a complete collection of data and the observation of the clinical phase of the disease from the diagnosis of epilepsy to the outcome of the study, death.
Differences in the use of health services among people with and without epilepsy in the United Kingdom: socio-economic and disease-specific determinants
- Medicine, PsychologyEpilepsy Research
- 2002
The epilepsy treatment gap in developing countries: A systematic review of the magnitude, causes, and intervention strategies
- MedicineEpilepsia
- 2008
The TG was mainly attributed to inadequate skilled manpower, cost of treatment, cultural beliefs, and unavailability of antiepileptic drugs (AEDs) and should be addressed using different intervention strategies, such as education and supply of AEDs.
Racial/ethnic disparities in the treatment of epilepsy: What do we know? What do we need to know?
- Psychology, MedicineEpilepsy & Behavior
- 2006