Standards for epidemiologic studies and surveillance of epilepsy

  title={Standards for epidemiologic studies and surveillance of epilepsy},
  author={David J Thurman and Ettore Beghi and Charles Begley and Anne T. Berg and Jeffrey R Buchhalter and Ding Ding and Dale C. Hesdorffer and Willard A Hauser and Lewis E. Kazis and Rosemarie Kobau and Barbara L Kroner and David M Labiner and Kore Kai Liow and Giancarlo Logroscino and M. T. Medina and Charles Rjc Newton and Karen L. Parko and Angelia M. Paschal and Pierre-Marie Preux and Josemir W Sander and Anbesaw Wolde Selassie and William H. Theodore and Torbj{\"o}rn Tomson and Samuel Wiebe},
Worldwide, about 65 million people are estimated to have epilepsy. Epidemiologic studies are necessary to define the full public health burden of epilepsy; to set public health and health care priorities; to provide information needed for prevention, early detection, and treatment; to identify education and service needs; and to promote effective health care and support programs for people with epilepsy. However, different definitions and epidemiologic methods complicate the tasks of these… 
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Future epilepsy surveillance should track incidence and prevalence over time, access to epilepsy care, direct and indirect costs, and the cost-effectiveness of treatment.
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To determine epilepsy prevalence among adults, assess their access to care, and provide baseline estimates for a Healthy People 2020 objective, CDC analyzed data from the 2010 National Health Interview Survey.
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It is estimated that approximately 0.6% of the population of the Nordic countries have active epilepsy, i.e. approximately 30,000 persons in Norway, one of the most common neurological disorders.
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About 1 out of 150 children is diagnosed with epilepsy during the first 10 years of life, with the highest incidence rate observed during infancy, in the Norwegian Mother and Child Cohort Study.
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A diagnostic algorithm including EEG and selected treatment schedules is only moderately sensitive for the detection of epilepsy and seizures.
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This study provides a comprehensive synthesis of the prevalence and incidence of epilepsy from published international studies and offers insight into factors that contribute to heterogeneity between estimates.
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Only a few epidemiological studies of epilepsy have been conducted in Korea, and those studies and related issues regarding epidemiological research on epilepsy are discussed.
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Early epilepsy diagnosis and proper anti-epileptic treatment usually result in satisfactory seizure control, and enable persons with epilepsy to lead a normal life.


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The proposed guidelines represent a consensus between epileptologists and epidemiologists and are presented in four parts: Definition of seizures and epilepsy, (b) seizure type classification, (c) risk factors; and (d) recommended measurement indexes.
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The health profile of self-reported epileptic subjects is similar to that obtained in studies involving defined epilepsy patients, and in the general population, self-identification as having epilepsy carries a significant burden of illness, reflected in poorer health, psychosocial function, and quality of life, and higher health care resource use.
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