Standardized Data Sharing in a Paediatric Oncology Research Network - A Proof-of-Concept Study

@article{Hochedlinger2015StandardizedDS,
  title={Standardized Data Sharing in a Paediatric Oncology Research Network - A Proof-of-Concept Study},
  author={Nina Hochedlinger and Michael Nitzlnader and Markus Falgenhauer and Stefan Welte and Dieter Hayn and Lefteris Koumakis and George Potamias and Manolis Tsiknakis and Davide Saraceno and Eugenia Rinaldi and Ruth Ladenstein and G{\"u}nter Schreier},
  journal={Studies in health technology and informatics},
  year={2015},
  volume={212},
  pages={
          27-34
        }
}
Data that has been collected in the course of clinical trials are potentially valuable for additional scientific research questions in so called secondary use scenarios. This is of particular importance in rare disease areas like paediatric oncology. If data from several research projects need to be connected, so called Core Datasets can be used to define which information needs to be extracted from every involved source system. In this work, the utility of the Clinical Data Interchange… CONTINUE READING
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