Speaking of research advance directives: planning for future research participation.

  title={Speaking of research advance directives: planning for future research participation.},
  author={Carol B. Stocking and Gavin W. Hougham and Deborah D Danner and Marian B Patterson and Peter J. Whitehouse and Greg A. Sachs},
  volume={66 9},
OBJECTIVE To examine one model of research advance directive as a possible way to reduce the mismatch between patient and proxy choices and also to learn more about how patients with mild to moderate dementia may want to keep decision making or cede it to their proxies in the future. METHODS Separate interviews were conducted with 149 dyads of dementia patients and family proxies about future enrollment in five types of research. Subsequent joint interviews were conducted with 69 of those… CONTINUE READING

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