Sickle Cell Trait Screening of Collegiate Athletes: Ethical Reasons for Program Reform

@article{Ferrari2015SickleCT,
  title={Sickle Cell Trait Screening of Collegiate Athletes: Ethical Reasons for Program Reform},
  author={Rosalie Ferrari and L. Parker and R. Grubs and L. Krishnamurti},
  journal={Journal of Genetic Counseling},
  year={2015},
  volume={24},
  pages={873-877}
}
The National Collegiate Athletic Association (NCAA) requires all student-athletes have their sickle cell trait (SCT) status confirmed prior to athletic participation. The NCAA approved the screening program in 2010 for institutions participating in Division I athletics and extended it in subsequent years to institutions at Division II and III levels. Ethical concerns about the controversial policy focus on its mandatory nature and potential impact on student-athletes, particularly through… Expand
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References

SHOWING 1-10 OF 21 REFERENCES
Testing of Collegiate Athletes for Sickle Cell Trait: What We, as Genetic Counselors Should Know
TLDR
The origins of the NCAA recommendations are addressed, the importance of proceeding with care is stressed, and a discussion in the genetic counseling community as to what, if any, should the role be is sought. Expand
Athletes’ Perceptions of National Collegiate Athletic Association–Mandated Sickle Cell Trait Screening: Insight for Academic Institutions and College Health Professionals
TLDR
Examining race- and gender-related differences in athletes’ perceptions regarding risk of having SCT and concern about loss of playing time found that athletes would have a high level of concern if found to carry the SCT found that African Americans were 9.07 times more likely than Caucasians to perceive risk of Having SCT. Expand
Screening student athletes for sickle cell trait--a social and clinical experiment.
On April 13, 2010, the legislative council for Division I of the National Collegiate Athletic Association (NCAA) approved mandatory testing for sickle cell carrier status (sickle cell trait) for allExpand
Sickle cell trait testing and athletic participation: a solution in search of a problem?
  • A. Thompson
  • Medicine
  • Hematology. American Society of Hematology. Education Program
  • 2013
TLDR
The epidemiology, genetics, and clinical studies of sicklecell trait are discussed; the implications of current policies regarding sickle cell trait screening and interventions for the student athlete are reviewed; and additional areas where more information is needed are examined. Expand
A policy impact analysis of the mandatory NCAA sickle cell trait screening program.
TLDR
It is estimated that over 2,000 NCAA Division I student-athletes with SCT will be identified under this screening policy and that, without intervention, about sevenNCAA Division IStudent-athlete would die suddenly as a complication of SCT over a 10-year period. Expand
Ethical Issues in Sports Medicine
TLDR
The aims of this article are to explicate the ethics of sports medicine, highlight the ethical issues, and provide some strategies and suggestions for ethical decision making. Expand
Incidence of Sudden Cardiac Death in National Collegiate Athletic Association Athletes
TLDR
The purpose of this study was to more precisely estimate the incidence of SCD in National Collegiate Athletic Association student-athletes and assess the accuracy of traditional methods for collecting data on SCD. Expand
Public health implications of sickle cell trait: a report of the CDC meeting.
TLDR
A primary outcome of the meeting was to provide the first step of an iterative process to move toward agreement regarding appropriate counseling, care, and, potentially, treatment of people with SCT. Expand
Psychological Aspects of Genetic Counseling. IX. Teaching and Counseling
  • S. Kessler
  • Psychology, Medicine
  • Journal of Genetic Counseling
  • 2004
TLDR
Greater attention needs to be given by training programs to the pedagogical and counseling skills genetic counselors may need in their professional work. Expand
Genetic Screening: Triumphs, Problems, and Controversies
TLDR
This paper characterizes the various types of programs and discusses some of the scientific, ethical, social, and economic issues that arise in evaluating any genetic screening program. Expand
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