Self- and Other-Diagnosis in User-Led Mental Health Online Communities
@article{Giles2011SelfAO, title={Self- and Other-Diagnosis in User-Led Mental Health Online Communities}, author={David C. Giles and Julie Newbold}, journal={Qualitative Health Research}, year={2011}, volume={21}, pages={419 - 428} }
This article consists of a qualitative analysis of discussion forums in online mental health communities whose members routinely write about diagnosis. The analysis concerns the function of diagnosis from the perspective of personal identity, with particular focus on the status of official diagnosis, as well as community members’ discussions of symptoms and psychiatric syndromes that amount to informal diagnosis or consultation. Self-diagnosis sometimes takes the form of recommended “quizzes…
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References
SHOWING 1-10 OF 46 REFERENCES
Social Support and Unsolicited Advice in a Bipolar Disorder Online Forum
- Computer ScienceQualitative health research
- 2009
It is speculated that such unsolicited advice might function at the ideological level to induct the new user into the mores of the group, not only in the kind of support it countenances giving, but into the very meaning of bipolarity itself.
Online information, extreme communities and internet therapy: Is the internet good for our mental health?
- Medicine, Psychology
- 2007
A review of preliminary randomized controlled trials shows online therapy to be effective for many disorders, and mental health professionals are advised to lead the creation of online treatments and information.
Ethical issues in qualitative research on internet communities
- BusinessBMJ : British Medical Journal
- 2001
Internet communities (such as mailing lists, chat rooms, newsgroups, or discussion boards on websites) are rich sources of qualitative data for health researchers and Qualitative analysis of internet postings may help to systematise needs, values, and preferences of consumers and professionals relevant to health and health care.
Pro-eating disorder websites: users' opinions.
- PsychologyEuropean eating disorders review : the journal of the Eating Disorders Association
- 2007
Visitors who interacted with others on the 'pro-eating disorder' websites and sought emotional support reported improved mental state after visiting, and for them, evidence was found of reduced impact from potentially damaging content.
The mundane realities of the everyday lay use of the internet for health, and their consequences for media convergence.
- SociologySociology of health & illness
- 2005
It is suggested that there is an emerging concordance between the lay use of the internet for health and illness and dominant (generally) biomedical conceptions of what constitutes "good quality" health information.
Inside the “Pro-ana” Community: A Covert Online Participant Observation
- PsychologyEating disorders
- 2007
A covert participant observation was conducted into the meanings of interaction in the “pro-ana” online community, suggesting that the sites are best understood as local cliques offering temporary relief from offline hostility, but it is doubtful whether they can be said to possess any therapeutic value beyond the immediate online context.
Doing being 'on the edge': managing the dilemma of being authentically suicidal in an online forum.
- Psychology, SociologySociology of health & illness
- 2009
Examination of how users of an Internet forum for 'suicidal thoughts' work up their authenticity in their opening posts and how these are responded to by fellow forum users suggests that the forum in part works as a site for suicidal identities to be tested out, authenticated and validated by individuals.
Constructing an autistic identity: AS voices online.
- PsychologyMental retardation
- 2006
Current research with people who have autism using online discussion groups demonstrated that these individuals are finding a voice in an online environment, and the Internet may be a powerful tool in enabling this voice to be heard.
Starving in cyberspace: a discourse analysis of pro-eating-disorder websites
- Sociology
- 2008
Recently, we have seen the emergence of ‘pro-eating-disorder’ websites and Internet communities, providing opportunities for girls and women who practise self-starvation and purging to converse and…
Model of Problematic Internet Use in People with a Sexual Interest in Children
- PsychologyCyberpsychology Behav. Soc. Netw.
- 2003
Data from the COPINE project has been used to generate a model of such offending behavior that emphasizes the role of cognitions in both the etiology, engagement with and problematic use of the Internet for those with a sexual interest in children.