Self-Determination for Individuals with Significant Cognitive Disabilities and Their Families

  title={Self-Determination for Individuals with Significant Cognitive Disabilities and Their Families},
  author={Ann P. Turnbull and Rud Turnbull},
  journal={Research and Practice for Persons with Severe Disabilities},
  pages={56 - 62}
We write this article as parents of our 33 year old son, JT, who has significant mental and emotional disabilities, and as professionals in the field of developmental and mental health disabilities. We write about self-determination, a value that we practice in our own lives and a value that we want JT (and our two daughters) to practice in theirs. In short, we want to take control of our lives in an independent fashion. We want JT to do likewise and we applaud the way our daughters have done… Expand

Tables from this paper

How to Promote Self-Determination for Young Children With Disabilities
Fran Martin, an early interventionist, arrives at the apartment of Jenny, a 3-year-old child with Down's syndrome, to provide services for Jenny and her mom, who is a single parent. Jenny is wearingExpand
Self-determination of young children with intellectual disability: understanding parents' perspectives
Self-determination is considered to be a basic human right which, to develop, demands contextual opportunities as well as individual competencies. For people with intellectual and developmentalExpand
The Impact of College on Self-Determination
such places. These learning and living environments provide opportunities for growth in self-efficacy and selfdetermination which, in turn, foster increased confidence in the young people thatExpand
Curiosity and mental retardation: beyond IQ.
The thesis is that intelligence and curiosity are distinguishable traits, less strongly related to each other than generally assumed. Expand
Desirable Conversations: Sexuality and Women with Intellectual Disabilities
The American Association on Intellectual and Developmental Disabilities (AAIDD, 2011) asserted that individuals with intellectual disabilities, irrespective of gender, have an equal right to learnExpand
Self-Determination in Relation to Having or Not Having a Legal Guardian: Case Studies of Two School-Aged Young Adults with Developmental Disabilities
IDEA mandates that all rights accorded to parents transfer to students when they reach the age of majority, unless their competence is questioned. Using case studies, this research examined theExpand
Hispanic Mothers' Perceptions of Self-Determination
Limited research has explored the perceptions of self-determination held by diverse families. In this study, seven mothers of transition-age youth with severe disabilities who were Hispanic wereExpand
Understanding Self-Determination and Families of Young Children With Disabilities in Home Environments
This article is about emergent self-determination for young children with disabilities in their home environments. The purpose of this study was to better understand family and home characteristicsExpand
Experiences of, and attitudes towards, growing up and adulthood : a comparative study of young people with and without mild intellectual disabilities
To some extent, ‘adulthood’ and ‘adult identity’ can be thought of as socially constructed phenomena, capable of evolving in response to societal consensus. For many typically developing youngExpand
Fostering the Foundations of Self-Determination in Early Childhood: A Process for Enhancing Child Outcomes Across Home and School
Early childhood practitioners can play a vital role in the development of early self-determination in partnership with families. Self-determination has been generally considered to be about personalExpand


Developing independence.
  • A. Turnbull, H. Turnbull
  • Medicine
  • Journal of adolescent health care : official publication of the Society for Adolescent Medicine
  • 1985
The recommendations made in this paper are grounded in the long-standing tradition of parens patriae and enlightened paternalism and seek to be deliberately and cautiously careful about the lives of adolescents with disabilities and their families. Expand
Self-Determination and Individuals with Significant Disabilities: Examining Meanings and Misinterpretations
There appears to be a belief held by many people, both in the field of disability services and among people in the general public, that self-determination is a topic not relevant for people withExpand
Developing cross-cultural competence : a guide for working with children and their families
As the U.S. population grows more and more diverse, how can professionals who work with young children and families deliver the best services while honoring different customs, beliefs, and values?Expand
Translating Self-Determination Concepts into Support for Adults with Severe Disabilities
Enhancing self-determination is an ongoing process that involves the development of skills, interaction with the environment, and the support of others. In this report we translate the concepts ofExpand
A Functional Model of Self-Determination
This article describes a functional model of self-determination as a dispositional characteristic of individuals. This model has been used to conduct research to examine the impact ofExpand
Defining and applying the concept of quality of life.
  • D. Felce
  • Psychology, Medicine
  • Journal of intellectual disability research : JIDR
  • 1997
Whatever its precise specification, the model is put forward as a framework for organizing measurement relevant to the quality of life concept rather than as a blueprint for deriving the ultimate single instrument. Expand
Families, Professionals, and Exceptionality: Collaborating for Empowerment
This chapter explains the role of families and parents in the context of schools as Systems: The Context for Family-Professional Collaboration, and discusses the importance of communicating among Reliable Allies. Expand
Behavioral Support for Students with Severe Disabilities
Behavioral support for students with severe disabilities has undergone dramatic advances in the past 15 years. The goals of effective behavioral support, as well as the procedures for reaching thoseExpand
Culturally and Linguistically Diverse Teachers in Special Education: Repairing or Redesigning the Leaky Pipeline
In this article, we introduce some of the issues that interact to produce the "leaky pipeline" we refer to in the title—a pipeline that results in a dearth of persons of color having professionalExpand
Quality of life in health promotion and rehabilitation: Conceptual approaches, issues, and applications.
Foreword - Ron Draper Introduction PART ONE: QUALITY OF LIFE IN HEALTH PROMOTION AND REHABILITATION The Centrality of Quality of Life in Health Promotion and Rehabilitation - Ivan Brown, RebeccaExpand