Self-Determination for Individuals with Significant Cognitive Disabilities and Their Families

@article{Turnbull2001SelfDeterminationFI,
  title={Self-Determination for Individuals with Significant Cognitive Disabilities and Their Families},
  author={Ann P. Turnbull and Rud Turnbull},
  journal={Research and Practice for Persons with Severe Disabilities},
  year={2001},
  volume={26},
  pages={56 - 62}
}
We write this article as parents of our 33 year old son, JT, who has significant mental and emotional disabilities, and as professionals in the field of developmental and mental health disabilities. We write about self-determination, a value that we practice in our own lives and a value that we want JT (and our two daughters) to practice in theirs. In short, we want to take control of our lives in an independent fashion. We want JT to do likewise and we applaud the way our daughters have done… Expand
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References

SHOWING 1-10 OF 45 REFERENCES
Developing independence.
  • A. Turnbull, H. Turnbull
  • Medicine
  • Journal of adolescent health care : official publication of the Society for Adolescent Medicine
  • 1985
TLDR
The recommendations made in this paper are grounded in the long-standing tradition of parens patriae and enlightened paternalism and seek to be deliberately and cautiously careful about the lives of adolescents with disabilities and their families. Expand
Self-Determination and Individuals with Significant Disabilities: Examining Meanings and Misinterpretations
There appears to be a belief held by many people, both in the field of disability services and among people in the general public, that self-determination is a topic not relevant for people with… Expand
Developing cross-cultural competence : a guide for working with children and their families
As the U.S. population grows more and more diverse, how can professionals who work with young children and families deliver the best services while honoring different customs, beliefs, and values?… Expand
Translating Self-Determination Concepts into Support for Adults with Severe Disabilities
Enhancing self-determination is an ongoing process that involves the development of skills, interaction with the environment, and the support of others. In this report we translate the concepts of… Expand
A Functional Model of Self-Determination
This article describes a functional model of self-determination as a dispositional characteristic of individuals. This model has been used to conduct research to examine the impact of… Expand
Defining and applying the concept of quality of life.
  • D. Felce
  • Psychology, Medicine
  • Journal of intellectual disability research : JIDR
  • 1997
TLDR
Whatever its precise specification, the model is put forward as a framework for organizing measurement relevant to the quality of life concept rather than as a blueprint for deriving the ultimate single instrument. Expand
Families, Professionals, and Exceptionality: Collaborating for Empowerment
TLDR
This chapter explains the role of families and parents in the context of schools as Systems: The Context for Family-Professional Collaboration, and discusses the importance of communicating among Reliable Allies. Expand
Behavioral Support for Students with Severe Disabilities
Behavioral support for students with severe disabilities has undergone dramatic advances in the past 15 years. The goals of effective behavioral support, as well as the procedures for reaching those… Expand
Culturally and Linguistically Diverse Teachers in Special Education: Repairing or Redesigning the Leaky Pipeline
In this article, we introduce some of the issues that interact to produce the "leaky pipeline" we refer to in the title—a pipeline that results in a dearth of persons of color having professional… Expand
Quality of life in health promotion and rehabilitation: Conceptual approaches, issues, and applications.
Foreword - Ron Draper Introduction PART ONE: QUALITY OF LIFE IN HEALTH PROMOTION AND REHABILITATION The Centrality of Quality of Life in Health Promotion and Rehabilitation - Ivan Brown, Rebecca… Expand
...
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