Saying Privacy, Meaning Confidentiality

  title={Saying Privacy, Meaning Confidentiality},
  author={Abraham P. Schwab and Lily Frank and Nada Gligorov},
  journal={The American Journal of Bioethics},
  pages={44 - 45}
Schonfeld et al. touch on the ever-narrowing gap between clinical practice and research as they address issues of privacy (and confidentiality) in the prescreening and review process for research. Although they put forth a number of recommendations about the sharing of information within the medical and research community, their arguments for these recommendations are underdeveloped and conceptually confused. As a result, their recommendations lack adequate support, and in the case of other… 
Consent for Data on Consent
A real-world case of this dilemma is presented in my own empirical research on refugees who agreed to repatriate to their countries of origin from Israel, and what theories on consent can help resolve this dilemma are considered.
The ASBH code of ethics and the limits of professional healthcare ethics consultations
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This essay will critique the ASBH code of ethics for HCECs as a first articulation of these responsibilities, and suggest some important strategies to improve upon this initial attempt to define the responsibilities ofHCECs.
Identifying Potential Participants in Research by Using their Confidential Medical Records
The significance of ethics in using patients’ medical records for research purposes and the way to recruit patients by using their confidential medical records ethically was explained.
The age of consent: digital photography and privacy in general healthcare practice
How well-delineated boundaries of clinical information sharing are blurred in practice is described, if not in law, to address the reasons for the apparent knowledge deficit of privacy obligations amongst practitioners.
An Exploratory Study on the Policies of Health Care Institutions in the New England Region of the United States Regarding Third-Party Access to Medical Records of Research Participants
  • M. Arquiza
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    Therapeutic innovation & regulatory science
  • 2013
A quantitative cross-sectional study design using a confidential online survey was used to examine policies of health care institutions in New England as they pertain to the legal and ethical aspects of third-party access to medical records of clinical research participants.
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A path-breaking analysis of the concept of privacy as a question of access to the individual and to information about him. An account of the reasons why privacy is valuable, and why it has the
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    The American journal of bioethics : AJOB
  • 2006
Though doctors have a professional obligation to prevent public peril, they do not honor it by breaching confidentiality, and it is shown how the protective purpose to be furthered by reporting is defeated by the practice of reporting.
“You Don't Know Me, But …”: Access to Patient Data and Subject Recruitment in Human Subjects Research
It is argued that maintaining a patient’s right to privacy is an essential factor in determining who has le- in this article, and the scope of research practices and regulations in the United States for two reasons.
The Right to Privacy
hat the individual shall have full protection in person and in property is a principle as old as the common law; but it has been found necessary from time to time to define anew the exact nature and
You don’t know me, but
  • . . ”: Access to patient data and subject recruitment in human subjects research. American Journal of Bioethics 11(11): 31–38.
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OCR privacy brief: Summary of the HIPAA Privacy Rule
  • May. Available at: pdf
  • 2003
The Right of Privacy
Privacy, morality, and the law
The Right to Privacy, Philosophy and Public Affairs
  • 1975