Risk Perception and Decision-making Processes in Candidates for Genetic Testing for Huntington’s Disease: An Interpretative Phenomenological Analysis

@article{Smith2002RiskPA,
  title={Risk Perception and Decision-making Processes in Candidates for Genetic Testing for Huntington’s Disease: An Interpretative Phenomenological Analysis},
  author={Jonathan A. Smith and Susan Michie and Mike Stephenson and Oliver W J Quarrell},
  journal={Journal of Health Psychology},
  year={2002},
  volume={7},
  pages={131 - 144}
}
This study is concerned with how candidates for pre-symptomatic genetic testing for Huntington’s disease represent their risk status and how they describe the process involved in their deciding whether or not to take the test. Transcripts of semi-structured interviews with five women offered testing were analysed by interpretative phenomenological analysis (IPA). The women find it difficult to conceptualize their current risk, and express reasons for a perceived enhanced or diminished risk… 
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  • Medicine
    American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics
  • 2008
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TLDR
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While most participants were positive about the session, the final theme presented the voices of two participants for whom the groups were poorly timed, it is recommended other centers consider offering people impacted by HD similar sessions.
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