Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

Abstract

Purpose:Return of individual genetic results to research participants, including participants in archives and biorepositories, is receiving increased attention. However, few groups have deliberated on specific results or weighed deliberations against relevant local contextual factors.Methods:The Electronic Medical Records and Genomics (eMERGE) Network… (More)
DOI: 10.1038/gim.2012.15

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@article{Fullerton2012ReturnOI, title={Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network}, author={Stephanie M Fullerton and Wendy A. Wolf and Kyle B Brothers and Ellen Wright Clayton and Dana C. Crawford and Joshua C. Denny and P. Thornton Greenland and Barbara K{\"o}nig and Kathleen A. Leppig and Noralane M. Lindor and Catherine A. McCarty and A. McGuire and Eugenia R. McPeek Hinz and Daniel B. Mirel and Erin M. Ramos and Marylyn D. Ritchie and Maureen E. Smith and Carol Waudby and Wylie Burke and Gail P. Jarvik}, journal={Genetics in Medicine}, year={2012}, volume={14}, pages={424-431} }